Please contact Charlene for invitation instructions to the meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org

Please contact Joanne for invitation instructions to the meeting. Contact Person: Joanne Matuzas Phone: 858-395-4609 Email: jmatuzas@aol.com

Please contact Cynthia for invitation instructions to the meeting. There are two different time options for a meeting this day.  Contact Person: Cynthia Clark Phone: 650-678-4132 Email: clark.cyl@gmail.com

Please contact Cynthia for invitation instructions to the meeting. There are two different time options for a meeting this day.  Contact Person: Cynthia Clark Phone: 650-678-4132 Email: clark.cyl@gmail.com

Location: Clarence's Steak & Seafood House 6636 Greensboro Rd Ridgeway, VA 24148 Contact Person: Peggy Gilley Phone: 276-956-3555

The PowerPoint decks from presentations made at the 2021 BEBRF Symposium in Philadelphia are now available online: Symposium PowerPoints

Please contact Ena for invitation instructions to the meeting. Speaker: Dr. Elizabeth Peckham Contact Person: Ena Wilmot Phone: 817-488-0445 Email: enamwa@hotmail.com

WE NEED YOUR HELP! Earlier this year several BEBRF patients participated in focus groups for a Patient-Centered Outcome (PCO) research project developing a phone app that will track the efficacy […]

Please contact Sharon for invitation instructions to the meeting. Contact: Sharon West Tel: 817-297-4389 Email: swest124@swbell.net

The drug company ADDEX together with Dr. Buz Jinnah of Emory University (who serves on our MAB and the Medical and Scientific Advisory Council for DMRF) is launching a trial […]

Please contact Linda for invitation instructions to the meeting. Contact: Linda Trahan Tel: 214-563-7937 Email: linda.trahan@sbcglobal.net

The PowerPoint decks from the presentations are now available online at PowerPoints of presentations