Support Groups

What is a Support Group Meeting?

A Support Group Meeting (“SGM”) is a meeting where patients share their experiences with Blepharospasm and cranial dystonia, including current treatments and their effectiveness. Sometimes patients invite a support person such as a spouse or friend to join them. Meetings are held either in person at a public location, such as in a meeting room of a local hospital, in the Support Group Leader’s home, or virtually by Zoom technology.

As patient Heidi Coggeshall said after her first SGM: “These meetings have been great because I didn’t know anyone else with blepharospasm when I was first diagnosed. I learned from others what helped, and did not help. I still attend them for the support they provide me plus always nice to see a familiar face.”

Group of people at San Diego SGM 2019

Can I help?

We need Support Group Leaders! Many patients have volunteered to be Support Group leaders. The BEBRF office provides help to train you, schedule meetings, and coordinates the invitations for patients in your area. We are happy to answer any questions you may have. Please share your experience and help a fellow patient!

Please contact us if you can help us be a leader or would like to attend a meeting

People on a meeting in Orlando

Find a meeting or someone to talk to in your area

The Benign Essential Blepharospasm Research Foundation consists of a head office located in Beaumont, Texas, and three* districts.

If you click on your state below, you will see Support Group Leaders (State Coordinators/Area and Co-Area Representatives) and Contact Persons for local groups. If there is not a support group in your state, you will see just the District Director and/or Contact Persons with a note stating there is no meeting in the state. Please contact the District Director in such cases as he/she can facilitate the formation of new groups provided that they are aware of sufficient interested individuals. Even if it is not possible to form a new support group, the District Director may be able to put you in touch with a BEBRF Contact Person in your area. The same holds true if the support group(s) in your state are too far away to attend. If you are near a state border, check the neighboring state as it may have a closer support group. Contact Persons are not Support Group Leaders. They are there in case you need someone to listen or can also offer recommendations for doctors in the area.

*Note that, in December 2018, the number of districts was reduced from four to three (Eastern, Central, Western). The support groups and leaders have not changed. However, the District Director listed for some states is now different.

ALABAMA

State Coordinator

132 Trudy Dr.

New Hope, AL 35760

Tel: 256-723-2661

Area Representative

570 Morphy Ave

Fairhope, Alabama 36532

Tel: 334-657-4057

E-mail: sbmryals@yahoo.com

Contact Person

24171 W Clearmont Dr

Elkmont, AL 35620

Tel: 256-614-3453

E-mail: bebrf.moderator@gmail.com

Central District Director

11181 S. KY 501

Liberty, KY 42539

Tel: 606-303-1132

Email: dir-c@blepharospasm.org

ALASKA

Cynthia Clark

Western District Director

8412 Calle Carabe St

Rancho Cucamonga, CA 91730

Tel: 650-678-4132

E-mail: dir-w@blepharospasm.org

ARIZONA

State Coordinator

8100 E Cloud Rd.

Tucson, AZ 85750

Tel: 520-290-3207

E-mail: jeanniefruean@comcast.net

Co-Area Representative

8559 W Pershing Ave

Peoria, AZ 85381

Tel: 602-327-7268

E-mail: tatiakey@live.com

Co-Area Representative

4331 E Piccadilly Rd

Phoenix, AZ 85018

Tel: 515-321-8571

E-mail: vickywballew@gmail.com

Western District Director

8412 Calle Carabe St

Rancho Cucamonga, CA 91730

Tel: 650-678-4132

E-mail: dir-w@blepharospasm.org

ARKANSAS

State Coordinator

6601 Connie Lane

Colleyville, TX 76034-5641

Tel: 817-488-0445

E-mail: enamwa@hotmail.com

Central District Director

11181 S. KY 501

Liberty, KY 42539-5475

Tel: 606-303-1132

Email: dir-c@blepharospasm.org

CALIFORNIA

State Coordinator

3719 Via Del Conquistador

San Diego, CA 92117

Tel: 858-395-4609

E-mail: jmatuzas@san.rr.com

Area Representative

5145 Harvest Estates

San Jose, CA 95135

Tel: 408-270-9787

E-mail: kberg@pacbell.net

Area Representative

8412 Calle Carabe St

Rancho Cucamonga, CA 91730

Tel: 650-678-4132

E-mail: dir-w@blepharospasm.org

Area Representative

2655 Appaloosa Trail

Pinole, CA 94564

Tel: 510-758-9211

E-mail: sherwincell@gmail.com

Area Representative

2727 E. Hampton Way

Fresno, CA 93726

Tel: 559-269-9491

E-mail: lorraine@etherwalker.com

Contact Person, Sacramento Area

2550 S. River Road

West Sacramento, CA 95691

Tel: 916-372-7926

E-mail: lauden1@cwnet.com

Contact Person

PO Box 5272

West Hills, CA 91308

Tel: 818-914-4187

E-mail: bconradson@hotmail.com

Contact person

983 Goldenrod Ln

San Luis Obispo, CA 94301

Tel: 805-441-7589

E-mail: reneecapen@yahoo.com

Western District Director

8412 Calle Carabe St

Rancho Cucamonga, CA 91730

Tel: 650-678-4132

E-mail: dir-w@blepharospasm.org

COLORADO

State Coordinator

732 St Andrews Pl

Loveland, CO 80537

Tel: 303-885-8097

E-mail: lisabouleykelly@cs.com

Western District Director

8412 Calle Carabe St

Rancho Cucamonga, CA 91730

Tel: 650-678-4132

E-mail: dir-w@blepharospasm.org

CONNECTICUT

Contact Person

963 Naugatuck Ave.

Milford, CT 06461

Tel: 203-641-3895

E-mail: livelycz6@optonline.net

Eastern District Director

14814 Kelly Farm Dr

Darnestown, MD 20874

Tel: 301-208-9818

E-mail: dir-e@blepharospasm.org

DELAWARE

Bryan Renehan

Eastern District Director

14814 Kelly Farm Dr

Darnestown, MD 20874

Tel: 301-208-9818

E-mail: dir-e@blepharospasm.org

DISTRICT OF COLUMBIA

Area Co-representative, Greater Washington Area

7509 Nevis Road

Bethesda, MD 20817

Tel: 301-229-4038

E-mail: jennifer_kawar@yahoo.com

Eastern District Director

14814 Kelly Farm Dr

Darnestown, MD 20874

Tel: 301-208-9818

E-mail: dir-e@blepharospasm.org

FLORIDA

Contact Person

8837 Cypress Preserve Pl.

Ft. Myers, FL 33912

Tel: 239-561-1356

Area Representative

2275 62nd Ave. N #5202

St. Petersburg, FL 33702

Tel: 727-520-0384

E-mail: charsandla@gmail.com

Area Representative

7744 Spring Creek Dr

West Palm Beach, FL 33411

Tel: 561-615-8451

E-mail: marciadefren@msn.com

Area Representative

11328 Tacito Creek Drive

Jacksonville, FL 32223

Email: bbcjax1@gmail.com

Tel: 904-614-3757

Contact Person

13842 Ketch Cove Drive

Jacksonville, FL 32224

Tel: 904-504-8840 (cell)

Area Representative

618 Vandenberg St

Altamonte Springs, FL 32701

Email: beb.joannashad@gmail.com

Tel: 407-234-8565

Area Representative

1421 Sheafe Ave NE, #107

Palm Bay, FL 32905

Tel: 321-327-5011

E-mail: moed489@mail.com

Eastern District Director

14814 Kelly Farm Dr

Darnestown, MD 20874

Tel: 301-208-9818

E-mail: dir-e@blepharospasm.org

GEORGIA

Shawna King

Contact Person

3513 Turtle Cove Ct SE

Marietta, GA 30067-4316

Tel: 678-468-6148

E-mail: shawna769@yahoo.com

 

Bryan Renehan

Eastern District Director

14814 Kelly Farm Dr

Darnestown, MD 20874

Tel: 301-208-9818

E-mail: dir-e@blepharospasm.org

HAWAII

Cynthia Clark

Western District Director

8412 Calle Carabe St

Rancho Cucamonga, CA 91730

Tel: 650-678-4132

E-mail: dir-w@blepharospasm.org

IDAHO

Taryn Hoffman

Contact Person

5607 N Larkwood Ave

Meridian, ID 83646

Tel: 203-362-5720

E-mail: ryntah@yahoo.com

 

Cynthia Clark

Western District Director

8412 Calle Carabe St

Rancho Cucamonga, CA 91730

Tel: 650-678-4132

E-mail: dir-w@blepharospasm.org

ILLINOIS

Area Representative

South Chicagoland

Tel: 409-832-0788

Contact Person

Indian Head Park, IL

Tel: 708-246-6127

E-mail: patschat50@hotmail.com

Central District Director

11181 S. KY 501

Liberty, KY 42539-5475

Tel: 606-303-1132

Email: dir-c@blepharospasm.org

INDIANA

Keith Klenke

Contact Person

4916 S Webster Rd

New Haven, IN 46774-9719

Tel: 260-623-3288

Email: kwklenke@gmail.com

 

Tishana Cundiff

Central District Director

11181 S. KY 501

Liberty, KY 42539-5475

Tel: 606-303-1132

Email: dir-c@blepharospasm.org

IOWA

Tishana Cundiff

Central District Director

11181 S. KY 501

Liberty, KY 42539-5475

Tel: 606-303-1132

Email: dir-c@blepharospasm.org

KANSAS

State Coordinator

14108 Barton St

Overland Park, KS 66221

Tel: 913-499-0443

E-mail: snowlin1967@gmail.com

Central District Director

11181 S. KY 501

Liberty, KY 42539-5475

Tel: 606-303-1132

Email: dir-c@blepharospasm.org

KENTUCKY

State Coordinator

4130 Tules Creek Rd.

Hardinsburg, KY 40143-6976

Tel: 270-617-3155

E-mail: vnott09@gmail.com

Central District Director

11181 S. KY 501

Liberty, KY 42539-5475

Tel: 606-303-1132

Email: dir-c@blepharospasm.org

LOUISIANA

State Coordinator

6601 Connie Lane

Colleyville, TX 76034-5641

Tel: 817-488-0445

E-mail: enamwa@hotmail.com

Contact person

2223 S. Columbia Road

Bogalusa, LA 70427

Tel: 985-732-2738

Area Representative

3125 Logan St

Shreveport, LA 71103

Tel: 318-289-0869

E-mail: pmccraney@gmail.com

Central District Director

11181 S. KY 501

Liberty, KY 42539-5475

Tel: 606-303-1132

Email: dir-c@blepharospasm.org

MAINE

Olivia Solodar

Contact Person

113 Glenwood Avenue

Portland, Maine 04103

Tel: 207-772-2249

Email: solwinfam@gwi.net

 

Bryan Renehan

Eastern District Director

14814 Kelly Farm Dr

Darnestown, MD 20874

Tel: 301-208-9818

E-mail: dir-e@blepharospasm.org

MARYLAND

Area Representative

6210 Biltmore Ave.

Baltimore, MD 21215

Tel: 410-358-5014

E-mail: NormDubin@gmail.com

Area Representative, Greater Washington Area

7509 Nevis Road

Bethesda, MD 20817

Tel: 301-229-4038

E-mail: jennifer_kawar@yahoo.com

Eastern District Director

14814 Kelly Farm Dr

Darnestown, MD 20874

Tel: 301-208-9818

E-mail: dir-e@blepharospasm.org

MASSACHUSETTS

Sande Young

Contact Person

18 Karen Rd

Newton, MA 02468

Tel: 617-527-1726

E-mail: ssyspts33@aol.com

 

Bryan Renehan

Eastern District Director

14814 Kelly Farm Dr

Darnestown, MD 20874

Tel: 301-208-9818

E-mail: dir-e@blepharospasm.org

MICHIGAN

Area Representative

2955 Belaire Dr.

Traverse City, MI 49684

Tel: 231-941-4243 (home)

Tel: 231-995-1058 (cell)

E-mail: caroltaberski@gmail.com

Area Representative, Southeast Michigan

24609 Lakeview Ct., Apt. 202

Farmington Hills, MI 48356

Tel: 248-381-5348

Email: weirg@hotmail.com

Central District Director

11181 S. KY 501

Liberty, KY 42539-5475

Tel: 606-303-1132

Email: dir-c@blepharospasm.org

MINNESOTA

State Coordinator

12201 Minnetonka Boulevard, Unit 117

Minnetonka, MN 55305

Tel: 952-938-2590

E-mail: virgil.koskibebrf@gmail.com

Central District Director

11181 S. KY 501

Liberty, KY 42539-5475

Tel: 606-303-1132

Email: dir-c@blepharospasm.org

MISSISSIPPI

State Coordinator

6601 Connie Lane

Colleyville, TX 76034-5641

Tel: 817-488-0445

E-mail: enamwa@hotmail.com

Area Representative

346 Austin Circle

Brandon, MS 39047

Tel: 601-573-3899

Email: MBaxterPetal@gmail.com

Central District Director

11181 S. KY 501

Liberty, KY 42539-5475

Tel: 606-303-1132

Email: dir-c@blepharospasm.org

MISSOURI

State Coordinator

14108 Barton St

Overland Park, KS 66221

Tel: 913-499-0443

E-mail: snowlin1967@gmail.com

Contact Person

9413 Sonora Ave.

St. Louis, MO 63144

Tel: 314-961-8641

E-mail: joanmet@aol.com

Central District Director

11181 S. KY 501

Liberty, KY 42539-5475

Tel: 606-303-1132

Email: dir-c@blepharospasm.org

MONTANA

Cynthia Clark

Western District Director

8412 Calle Carabe St

Rancho Cucamonga, CA 91730

Tel: 650-678-4132

E-mail: dir-w@blepharospasm.org

NEBRASKA

Area Representative

2320 N 56th St.

Omaha, NE 68104

Tel: 402-553-7547

E-mail: tom-margaret@cox.net

Western District Director

8412 Calle Carabe St

Rancho Cucamonga, CA 91730

Tel: 650-678-4132

E-mail: dir-w@blepharospasm.org

NEVADA

State Coordinator

117 Lotus Circle

Carson City, NV 89703

Tel: 775-884-1279

E-mail: norma@coolerking.com

Western District Director

8412 Calle Carabe St

Rancho Cucamonga, CA 91730

Tel: 650-678-4132

E-mail: dir-w@blepharospasm.org

NEW HAMPSHIRE

Alan Phair

Contact Person

57A Main Street

Atkinson, NH 03811

Tel: 603-401-1001

E-mail: aphair@aol.com

Terry Huntley

Contact Person

24 Walden Pond Drive

Nashua, NH 03064

Tel: 603-594-8717

E-mail: snoopsprincess@yahoo.com

Bryan Renehan

Eastern District Director

14814 Kelly Farm Dr

Darnestown, MD 20874

Tel: 301-208-9818

E-mail: dir-e@blepharospasm.org

NEW JERSEY

Co-Area Representative

29 Edgewater Drive

Matawan, NJ 07747

Tel: 732-566-0947

Email: ginchk@yahoo.com

Co-Area Representative

233 5th St.

Jersey City, NJ 07302

Tel: 201-240-0946

Email: rebecca.teichman01@gmail.com

Eastern District Director

14814 Kelly Farm Dr

Darnestown, MD 20874

Tel: 301-208-9818

E-mail: dir-e@blepharospasm.org

NEW MEXICO

Cynthia Clark

Western District Director

8412 Calle Carabe St

Rancho Cucamonga, CA 91730

Tel: 650-678-4132

E-mail: dir-w@blepharospasm.org

NEW YORK

Area Representative

46 Harris Road

Waterford, NY 12188

Tel: 518-542-2328

E-mail: simplisand@hotmail.com

Area Representative

160 Riverside Drive, Apt 5b

New York, NY 10024

Tel: 212-496-0294

E-mail: hlauffer@earthlink.net

Area Representative

82 Stephan St

Kingston, NY 12401

Tel: 845-853-8077

E-mail: jafwa007@aol.com

Area Representative

4805 Meyer Rd

Pendleton, NY 14120

Tel: 716-984-7866

E-mail: markeoehm@gmail.com

Eastern District Director

14814 Kelly Farm Dr

Darnestown, MD 20874

Tel: 301-208-9818

E-mail: dir-e@blepharospasm.org

NORTH CAROLINA

Area Representative

305 Wild Rice Way

Wilmington, NC 28412

Tel: 910-619-9976

E-mail: bebrf.nc@charter.net

Area Representative

825 Plantation Crossing Drive, Apt. 31

Matthews, NC 28105

E-mail: jsell@comporium.net

Tel: 704-246-8014

Contact Person

5014 Folly Lane

Fort Mill, SC 29707-0054

Tel: 803-548-0115

E-mail: nrendino@outlook.com

*speaks Spanish

Eastern District Director

14814 Kelly Farm Dr

Darnestown, MD 20874

Tel: 301-208-9818

E-mail: dir-e@blepharospasm.org

NORTH DAKOTA

Kathleen Wiese

Contact Person

10750 Rushmore Road

Bismarck, ND 58503

Tel: 701-258-4208

E-mail: kwiese@bis.midco.net

 

Tishana Cundiff

Central District Director

11181 S. KY 501

Liberty, KY 42539-5475

Tel: 606-303-1132

Email: dir-c@blepharospasm.org

OHIO

Contact Person

9162 Dominion Circle

Cincinnati, OH 45249

Tel: 513-720-5638

E-mail: dwollam@fuse.net

Area Representative

1822 Orchard Drive

Akron, OH 44333-1851

Tel: 330-666-2807 (home)

Tel: 303-571-0418 (mobile)

Email: carolejomasa@gmail.com

Central District Director

11181 S. KY 501

Liberty, KY 42539-5475

Tel: 606-303-1132

Email: dir-c@blepharospasm.org

OKLAHOMA

Area Representative

511 Fairway Circle

Broken Arrow, OK 74011

Email: Helen123@cox.net

Tel: 918-455-2133 (home)

Tel: 918-636-7334 (cell)

Contact Person

8442 S. College Ave.

Tulsa, OK 74137-1448

Tel: 918-496-2176

E-mail: jubo@cox.net

Western District Director

8412 Calle Carabe St

Rancho Cucamonga, CA 91730

Tel: 650-678-4132

E-mail: dir-w@blepharospasm.org

OREGON

Ruby Lambert

Contact Person

364 W. Stewart Ave.

Medford, OR 97501

Tel: 541-734-2308 (home)

Tel: 541-326-5394 (cell)

E-mail: heyu62@charter.net

 

Cynthia Clark

Western District Director

8412 Calle Carabe St

Rancho Cucamonga, CA 91730

Tel: 650-678-4132

E-mail: dir-w@blepharospasm.org

PENNSYLVANIA

Contact Person

P.O. Box 129

Clifford, PA 18413

Tel: 570-222-4328

E-mail: nwilliam@nep.net

Area Representative

1208 Elder Avenue

N Cambria, PA 15714-1427

Tel: 814-948-5569

E-mail: cherylk20@yahoo.com

Co-Representative, Philadelphia Area

7267 Calvin Road

Upper Darby, PA 19082

Tel: 610-352-5685

E-mail: jnikelsky@msn.com

Co-Representative, Philadelphia Area

42 Llanberris Road

Bala Cynwyd, PA 19004

Tel: 610-715-3249

E-mail: annietop6@gmail.com

Contact Person

1070 Lindendale Dr

Pittsburgh, PA 15243

Tel: 412-531-7329

E-mail: dmaniet@aol.com

Eastern District Director

14814 Kelly Farm Dr

Darnestown, MD 20874

Tel: 301-208-9818

E-mail: dir-e@blepharospasm.org

PUERTO RICO

Nilda Rendino*

Contact Person

5014 Folly Lane

Fort Mill, SC 29707-0054

Tel: 803-548-0115

E-mail: nrendino@outlook.com

*speaks Spanish

 

Bryan Renehan

Eastern District Director

14814 Kelly Farm Dr

Darnestown, MD 20874

Tel: 301-208-9818

E-mail: dir-e@blepharospasm.org

RHODE ISLAND

Hosanna Derderian

Contact Person

97 Ellison Street

Cranston, RI 02920

Tel: 401-942-3103

E-mail: hosanna.1@netzero.net

 

Bryan Renehan

Eastern District Director

14814 Kelly Farm Dr

Darnestown, MD 20874

Tel: 301-208-9818

E-mail: dir-e@blepharospasm.org

SOUTH CAROLINA

State Coordinator

17 Williams Road

Taylors, SC 29687

Tel: 864-354-4699

E-mail: plmiller@outlook.com

Contact Person

5014 Folly Lane

Fort Mill, SC 29707-0054

Tel: 803-548-0115

E-mail: nrendino@outlook.com

*speaks Spanish

Eastern District Director

14814 Kelly Farm Dr

Darnestown, MD 20874

Tel: 301-208-9818

E-mail: dir-e@blepharospasm.org

SOUTH DAKOTA

Tishana Cundiff

Central District Director

11181 S. KY 501

Liberty, KY 42539

Tel: 606-303-1132

Email: dir-c@blepharospasm.org

TENNESSEE

Mildred Blackwell

Contact Person

1104 N Parkway #37

Jackson, TN 38305

Tel: 731-736-1513

E-mail: mildredblackwell@gmail.com

 

Tishana Cundiff

Central District Director

11181 S. KY 501

Liberty, KY 42539

Tel: 606-303-1132

Email: dir-c@blepharospasm.org

TEXAS

State Coordinator

6601 Connie Lane

Colleyville, TX 76034

Tel: 817-488-0445

E-mail: enamwa@hotmail.com

Area Representative – Houston Area

6035 Falling Briar Lane

Sugar Land, TX 77479

Tel: 979-253-0090

Email: neuronneuronneuron@gmail.com

Area Representative

21611 Amber Grain Ln

Cypress, TX 77433

Tel: 409-363-2206

E-mail: carlas.powell@gmail.com

Contact Person

19914 Black Cherry Bend Ct

Cypress, TX 77433

Tel: 281-865-8463

E-mail: Nelsonbz21@gmail.com

Area Representative

400 Giles Ct

Crowley, TX 76036

Tel: (817) 991-5584

E-mail: swest124@swbell.net

Central District Director

11181 S. KY 501

Liberty, KY 42539-5475

Tel: 606-303-1132

Email: dir-c@blepharospasm.org

UTAH

Cynthia Clark

Western District Director

8412 Calle Carabe St

Rancho Cucamonga, CA 91730

Tel: 650-678-4132

E-mail: dir-w@blepharospasm.org

VERMONT

David Johnson

Contact Person

3 Kiln Road

Essex Junction, VT 05452

Tel: 802-879-8863

E-mail: mdjkiln@gmail.com

 

Bryan Renehan

Eastern District Director

14814 Kelly Farm Dr

Darnestown, MD 20874

Tel: 301-208-9818

E-mail: dir-e@blepharospasm.org

VIRGINIA

Contact Person

1516 Timbercrest Ct.

Henrico, VA 23238

Tel: 804-740-2936

E-mail: nicholspc@verizon.net

Area Representative

134 Andra Dr.

Ridgeway, VA 24148

Tel: 276-956-3555

Area Representative

2320 Westover Ave SW

Roanoke, VA 24015

Tel: 540-989-4850

E-mail: scantyell@gmail.com

Area Representative, Greater Washington Area

7509 Nevis Road

Bethesda, MD 20817

Tel: 301-229-4038

E-mail: jennifer_kawar@yahoo.com

Area Representative

6304 Anderson Mill Road

Church Road, VA 23833

Tel: 804-704-0749

Email: susanrodgers6304@gmail.com

Eastern District Director

14814 Kelly Farm Dr

Darnestown, MD 20874

Tel: 301-208-9818

E-mail: dir-e@blepharospasm.org

WASHINGTON STATE (For Washington, DC, see District of Columbia)

State Coordinator

2105 NW 201st St.

Shoreline, WA 98177

E-mail: pbakalor@outlook.com

Contact Person

364 W. Stewart Ave.

Medford, OR 97501

Tel: 541-734-2308

Cell: 541-326-5394

E-mail: heyu62@charter.net

Contact Person

Mercer Island, WA

Tel: 206-236 1710

E-mail: w0301@aol.com

Contact Person

Puyallup, WA

Tel: 253-845 4502

E-mail: ruthmanderson@comcast.net

Western District Director

8412 Calle Carabe St

Rancho Cucamonga, CA 91730

Tel: 650-678-4132

E-mail: dir-w@blepharospasm.org

WEST VIRGINIA

Mike Sowers

Contact Person

38 Shallow Creek Drive

Ranson, WV 25438

Tel: 304-724-7543

E-mail: mksowers@comcast.net

 

Carolyn Morris

Contact Person

5007 Bennington Drive

Cross Lanes, WV 25313

Tel: 304-768-1847

 

Bryan Renehan

Eastern District Director

14814 Kelly Farm Dr

Darnestown, MD 20874

Tel: 301-208-9818

E-mail: dir-e@blepharospasm.org

WISCONSIN

State Coordinator

3714 Easy Street

Manitowoc WI 54220

Tel: 920-682-3782

E-mail: Sjb.bebrf.wi.coord@att.net

Area Representative

1405 Lewon Dr.

Madison, WI 53711

Tel: 608-271-0313

E-mail: grnmtn2@gmail.com

Area Representative, Eau Claire Area

23340 County Highway X

Cadott, WI 54727

Tel: 715-289-4513

E-mail: m.leduc5.7.1@gmail.com

Central District Director

11181 S. KY 501

Liberty, KY 42539-5475

Tel: 606-303-1132

Email: dir-c@blepharospasm.org

WYOMING

Cynthia Clark

Western District Director

8412 Calle Carabe St

Rancho Cucamonga, CA 91730

Tel: 650-678-4132

E-mail: dir-w@blepharospasm.org