On February 27th, the Food and Drug Administration (FDA) of the US government will be holding a Virtual Event entitled “Intersections with Rare Diseases – A Patient-focused Event,” which will explore a range of topics related to rare diseases.             Participants will have the opportunity to: Hear directly from the FDA on initiatives to advance […]

On February 28th, the National Institutes of Health (NIH)’s National Center for Advancing Translational Sciences (NCATS) will co-sponsor this year’s Rare Disease Day event at the NIH Clinical Center. This event aims to raise awareness about rare diseases, the people they affect, and NIH research collaborations that address scientific challenges and advance research for new […]

The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

This meeting is held in Eastern time zone. For residents of the following states: AL, AR, IL, IN, IA, KS, KY, LA, MI, MN, MS, MO, ND, OH, SD, TN, TX, WI Please contact Tishana Cundiff for invitation instructions to meeting. Contact Person: Tishana Cundiff Phone: 606-303-1132 Email: tishana333@yahoo.com