FDA Rare Disease Day Virtual Event- “Intersections with Rare Diseases- A Patient-Focused Event”

Online

On February 27th, the Food and Drug Administration (FDA) of the US government will be holding a Virtual Event entitled “Intersections with Rare Diseases – A Patient-focused Event,” which will explore a range of topics related to rare diseases.             Participants will have the opportunity to: Hear directly from the FDA on initiatives to advance […]

NIH Rare Disease Day Event

Online

On February 28th, the National Institutes of Health (NIH)’s National Center for Advancing Translational Sciences (NCATS) will co-sponsor this year’s Rare Disease Day event at the NIH Clinical Center. This event aims to raise awareness about rare diseases, the people they affect, and NIH research collaborations that address scientific challenges and advance research for new […]

National Support Group Meeting

Zoom

The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

Central District Support Group Meeting

Zoom

This meeting is held in Eastern time zone. For residents of the following states: AL, AR, IL, IN, IA, KS, KY, LA, MI, MN, MS, MO, ND, OH, SD, TN, TX, WI Please contact Tishana Cundiff for invitation instructions to meeting. Contact Person: Tishana Cundiff Phone: 606-303-1132 Email: tishana333@yahoo.com      

National Support Group Meeting

Zoom

This meeting is held in central time. Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org    

West Dallas/Fort Worth, TX Support Group Meeting

Zoom

This meeting is held in Central Time Zone. Please contact Sharon for invitation instructions to meeting. Contact Person: Sharon West Phone: 817-297-4389 Email: swest124@swbell.net  

Support Group Meeting- Western District

Zoom

If you live in these states: AK, AZ, CA, CO, HI, ID, MT, NE, NV, NM, OK, OR, UT, WA, WY Please contact Cynthia for invitation instructions to the meeting.  This meeting will be held in Pacific Standard Time.

DFW Area Support Group Meeting (TX)

Zoom

This meeting is held in Central Time Zone. Please contact Ena for invitation instructions to meeting. Contact Person: Ena Wilmot Phone: 817-488-0445 Email: enamwa@hotmail.com 

National Support Group Meeting

Zoom

Please contact Charlene for invitation instructions to meeting.  This meeting is held in Central Standard Time.

National Support Group Meeting

Zoom

Please contact Charlene for invitation instructions to meeting.  This meeting is held in Central Standard Time.