Newly Diagnosed? Call the BEBRF office: 409-832-0788

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Find a Doctor
  • About
    • What is Blepharospasm?
    • Newly Diagnosed?
    • Signs & Symptoms
    • Genetics
  • Education
    • Medical Publications
    • Related Articles
    • Videos
    • Medical Glossary
    • FAQs
  • Treatments
    • Botulinum Toxin
    • Oral Medications
    • Surgery
    • Deep Brain Stimulation
    • Non - Surgical Aids
  • Related Disorders
    • Blepharitis
    • Dry Eye
    • Meige Syndrome – Oromandibular Dystonia
    • Hemifacial Spasm
    • Apraxia
    • Photophobia
    • Sjogren’s
    • Trichiasis
    • Eyelid Twitch
  • Injection Advice
    • Injections Tips
    • Injection Journal
    • Common Injection Patterns
    • More Frequent Injections
  • Support Groups
    • Submit Your Meeting
  • Coping Skills
  • Patient Stories
  • Ask the Doctor
  • Pharma Co Help
  • Newsletter
  • Other Resources
  • Bulletin Board
  • Testimonials
  • Apply for a Grant
  • Funded Research
  • Partnered Research
  • Dystonia Coalition Research
  • Volunteer
    • Start a Support Group
    • Get involved in a Clinical Trial
    • Donate your Brain for Research
    • Increase Awareness
    • Offer Your Expertise
  • Participate
    • Tell your Story
    • Advocate with us
    • Fundraise
  • Shop
    • Our Store
    • BEBRF Merchandise
    • Charitable Shopping
  • Ways to Help
    • Planned Giving
    • Employer Matching Donations
  • Mission
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  • Medical Advisory Board
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  • Webinars
  • From the Executive Director
10 events found.

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  • August 2021

  • Mon 9
    August 9, 2021 @ 11:00 am - 1:00 pm

    Northeast Texas

    Zoom

    Please contact Linda for invitation instructions to the meeting. Contact: Linda Trahan Tel: 214-563-7937 Email: linda.trahan@sbcglobal.net

  • Mon 23
    August 23, 2021 @ 1:00 pm - 3:00 pm

    UK Support Meeting

    Zoom

    Please contact Charlene for invitation instructions to the meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org

  • September 2021

  • Fri 10
    September 10, 2021 @ 1:00 pm - 3:00 pm

    National Support Meeting

    Zoom

    Please contact Charlene for invitation instructions to the meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org

  • Wed 15
    September 15, 2021 @ 1:00 pm - 3:00 pm

    San Diego, CA

    Zoom

    Please contact Joanne for invitation instructions to the meeting. Contact Person: Joanne Matuzas Phone: 858-395-4609 Email: jmatuzas@aol.com

  • Thu 16
    September 16, 2021 @ 1:30 pm - 3:30 pm

    Los Angeles, CA

    Zoom

    Please contact Cynthia for invitation instructions to the meeting. There are two different time options for a meeting this day.  Contact Person: Cynthia Clark Phone: 650-678-4132 Email: clark.cyl@gmail.com

  • Sat 25
    September 25, 2021 @ 12:30 pm - 2:30 pm

    Ridgeway, VA

    Clarence's Steak & Seafood House 6636 Greensboro Rd, Ridgeway, VA, United States

    Location: Clarence's Steak & Seafood House 6636 Greensboro Rd Ridgeway, VA 24148 Contact Person: Peggy Gilley Phone: 276-956-3555

  • October 2021

  • Tue 12
    October 12, 2021 @ 8:00 am - 5:00 pm

    Presentations from the 2021 Symposium

    The PowerPoint decks from presentations made at the 2021 BEBRF Symposium in Philadelphia are now available online: Symposium PowerPoints

  • Tue 19
    October 19, 2021 @ 12:00 pm - 2:00 pm

    Dallas, TX

    Zoom

    Please contact Ena for invitation instructions to the meeting. Speaker: Dr. Elizabeth Peckham Contact Person: Ena Wilmot Phone: 817-488-0445 Email: enamwa@hotmail.com

  • Wed 27
    October 27, 2021 - November 16, 2021

    You Can Participate in Research!

    WE NEED YOUR HELP! Earlier this year several BEBRF patients participated in focus groups for a Patient-Centered Outcome (PCO) research project developing a phone app that will track the efficacy of botulinum toxin injections from injection cycle to injection cycle. The project has been created by Drs. Sarah Pirio Richardson (University of New Mexico) and […]

  • Wed 27
    October 27, 2021 @ 1:30 pm - 3:30 pm

    Cancelled

    Zoom

    Please contact Sharon for invitation instructions to the meeting. Contact: Sharon West Tel: 817-297-4389 Email: swest124@swbell.net

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Benign Essential Blepharospasm Research Foundation

409-832-0788 409-832-0890 bebrf@blepharospasm.org
PO Box 12468
Beaumont, TX 77726
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