On February 27th, the Food and Drug Administration (FDA) of the US government will be holding a Virtual Event entitled “Intersections with Rare Diseases – A Patient-focused Event,” which will explore a range of topics related to rare diseases. Participants will have the opportunity to: Hear directly from the FDA on initiatives to advance […]
On February 28th, the National Institutes of Health (NIH)’s National Center for Advancing Translational Sciences (NCATS) will co-sponsor this year’s Rare Disease Day event at the NIH Clinical Center. This event aims to raise awareness about rare diseases, the people they affect, and NIH research collaborations that address scientific challenges and advance research for new […]
The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org
This meeting is held in Eastern time zone. For residents of the following states: AL, AR, IL, IN, IA, KS, KY, LA, MI, MN, MS, MO, ND, OH, SD, TN, TX, WI Please contact Tishana Cundiff for invitation instructions to meeting. Contact Person: Tishana Cundiff Phone: 606-303-1132 Email: tishana333@yahoo.com
This meeting is held in central time. Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org
This meeting is held in Central Time Zone. Please contact Sharon for invitation instructions to meeting. Contact Person: Sharon West Phone: 817-297-4389 Email: swest124@swbell.net
Please contact Helene for invitation instructions to the meeting. This meeting will be held in Eastern Standard Time.
If you live in these states: AK, AZ, CA, CO, HI, ID, MT, NE, NV, NM, OK, OR, UT, WA, WY Please contact Cynthia for invitation instructions to the meeting. This meeting will be held in Pacific Standard Time.
Please contact Charlene for invitation instructions to meeting. This meeting is held is Central Standard Time.
This meeting is held in Central Time Zone. Please contact Ena for invitation instructions to meeting. Contact Person: Ena Wilmot Phone: 817-488-0445 Email: enamwa@hotmail.com
Please contact Charlene for invitation instructions to meeting. This meeting is held in Central Standard Time.
Please contact Charlene for invitation instructions to meeting. This meeting is held in Central Standard Time.
Date: Friday, August 18, 2023 Time: 1 pm- 3 pm (Central Time) Location: Zoom Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409.832.0788 Email: charlene@blepharospasm.org
Date: Monday, August 28, 2023 Time: 7pm Central Time Location: Zoom Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409.832.0788 Email: charlene@blepharospasm.org
Date: Wednesday, September 13, 2023 Time: 1 pm- 3pm Central Time Location: Zoom Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409.832.0788 Email: charlene@blepharospasm.org
Date: Friday, September 15, 2023 Time: 1pm - 3pm central time Location: Zoom (Please contact Carlas for invitation instructions to the meeting) Contact Person: Carlas Powell Phone: 409-363-2206 Email: carlas.powell@gmail.com
2023 BEBRF Annual Symposium Location: St. Louis, MO Venue: Hyatt Regency St. Louis at the Arch Dates: Friday, September 22nd – Saturday, September 23rd To make reservations in the discounted BEBRF room block at the Hyatt Regency St. Louis at the Arch, please click on this link: Benign Essential Blepharospasm Research Foundation 2023 Symposium (hyatt.com) Or call toll […]
Date: Thursday, October 5, 2023 Time: 1pm-3pm Central Time Location: Zoom Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409.832.0788 Email: charlene@blepharospasm.org
Western District Greater Los Angeles Area Support Group Meeting Date: Saturday, October 7, 2023 Time: 10 am, Pacific Time Location: Zoom Please contact Cynthia Clark for invitation instructions to the meeting. Contact Person: Cynthia Clark Phone: 650-678-4132 Email: clark.cyl@gmail.com
Greater Los Angeles Area Date: Saturday, October 7, 2023 Time: 4:30 Pacific Location: Walter's Restaurant- 310 Yale Ave Claremont, CA 91711 Contact Person: Cynthia Clark Phone: 650.678.4132 Email: clark.cyl@gmail.com
Tuesday, October 17 2023 Time: Noon- 2 pm This meeting is held in Central Time Zone. Location: Zoom Please contact Ena for invitation instructions to meeting. Contact Person: Ena Wilmot Phone: 817-488-0445 Email: enamwa@hotmail.com
Date: Friday, October 20, 2023 Time: 1pm-3pm Central Time Location: Zoom Please contact Charlene for invitation instructions to the meeting. Contact Person: Charlene Hudgins Phone: 409.832.0788 Email: charlene@blepharospasm.org
Date: Wednesday, October 25, 2023 Time: 10:30 am, Eastern Location: Zoom Please contact Jennifer Kawar for invitation instructions to the meeting. Contact Person: Jennifer Kawar Phone: 301.229.4038 Email: jennifer_kawar@yahoo.com
Date: Thursday, November 9, 2023 Time: 3pm, Pacific Location: Zoom Please contact Cynthia Clark for invitation instructions to the meeting. Contact Person: Cynthia Clark Phone: 650.678.4132 Email: clark@cyl@gmail.com
Date: Sunday, November 12, 2023 Time: 11am, Central Location: Zoom Please contact Helene Lauffer for invitation instructions to the meeting. Contact Person: Helene Lauffer Phone: 212-496-0294 or 917-544-4307 Email: hlauffer@earthlink.net
Date: Monday, November 13, 2023 Time: 7 pm Central Location: Zoom Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org
Date: Wednesday, November 15, 2023 Time: 10:30 am, Eastern Location: Zoom Please contact Jennifer Kawar for invitation instructions to meeting. Contact Person: Jennifer Kawar Phone: 301-229-4038 Email: jennifer_kawar@yahoo.com
Date: Thursday, November 16, 2023 Time 1pm-3pm Central Location: Zoom Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org
Date: Wednesday, November 29, 2023 Time: 10:30 am, eastern time Location: Zoom Please contact Jennifer Kawar for invitation instructions to meeting. Contact Person: Jennifer Kawar Phone: 301-229-4038 Email: jennifer_kawar@yahoo.com