Please contact Ena for invitation instructions to the meeting. Contact: Ena Wilmot Tel: 817-488-0445 Email: enamwa@hotmail.com 

Please contact Carlas for invitation instructions to the meeting. Contact: Carlas Powell Tel: 409-363-2206 Email: carlas.powell@gmail.com

Please contact Sharon for invitation instructions to the meeting. Contact: Sharon West Tel: 817-297-4389 Email: swest124@swbell.net

The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

The meeting is in held in Central Time Zone. Please contact Linda for invitation instructions to the meeting.  Contact:  Linda Trahan  Phone: 214-563-7937  E-mail: linda.trahan@sbcglobal.net

The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

This meeting is held in Eastern Time Zone. For residents of the following states: CT, DE, DC, FL, GA, MA, MD, ME, NH, NJ, NY, NC, PA, PR, RI, SC, VT, VA, WV. Please contact Bryan for invitation instructions to meeting. Contact Person: Bryan Renehan Phone: 301-461-0679 Email: bryan.renehan@gmail.com

The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

Join us on Friday, February 24th @ 1 pm central time, when we will be joined by presenter Rebecca Petris, Executive Director of the Dry Eye Foundation, to discuss practical applications for managing symptoms of dry eye.  If you are interested in viewing the webinar, please follow the 2 step process: 1) First, register for […]

On February 27th, the Food and Drug Administration (FDA) of the US government will be holding a Virtual Event entitled “Intersections with Rare Diseases – A Patient-focused Event,” which will explore a range of topics related to rare diseases.             Participants will have the opportunity to: Hear directly from the FDA on initiatives to advance […]

On February 28th, the National Institutes of Health (NIH)’s National Center for Advancing Translational Sciences (NCATS) will co-sponsor this year’s Rare Disease Day event at the NIH Clinical Center. This event aims to raise awareness about rare diseases, the people they affect, and NIH research collaborations that address scientific challenges and advance research for new […]