BEBRF Privacy Statement
Donor Privacy
Your privacy is a priority for the Benign Essential Blepharospasm Research Foundation (BEBRF). We are committed to a successful stewardship program for our donors. For donations of $100 or more, the BEBRF may acknowledge the names of individual donors in an annual report and similar publications. For corporate and foundation partners, we may acknowledge the names in publicity surrounding events and in an annual report. All BEBRF donors have the option at any time to request that their names not be published in BEBRF materials or publicity. Those who have asked to remain anonymous will be excluded from this listing.
The BEBRF is committed to respecting the privacy of our donors. We maintain consistent policies and procedures for guarding the privacy and confidentiality of donor information. All information concerning donors or prospective donors, including their names, addresses and telephone numbers, the names of their beneficiaries, the amount of their gift, etc., shall be kept strictly confidential by the BEBRF, its staff, and volunteers unless permission is obtained from donors to release such information. All information that is obtained and maintained by the BEBRF is done through private and secure systems. Access to the data is on a needs only basis. A unique login name and password are required to enter the database.
Donor information is used solely by BEBRF and is not distributed or sold to third parties. Should you wish to update or correct your personal contact information, remove yourself from any or all of our contact lists, or discuss a privacy concern with us, please contact the BEBRF at 409-832-0788 or bebrf@blepharospasm.org.
To the extent any donations are processed through a third-party service provider, our donors’ information will only be used for purposes necessary to process the donation.
Privacy for blepharospasm.org
The following discloses our information gathering and dissemination practices for this website:
We use your IP address to help diagnose problems with our server and to administer our website. Our site’s registration forms require users to give us contact information (like their name and email address) and demographic information (like their zip code or age). We use customer contact information from the registration form to send the user information about blepharospasm and BEBRF. The customer’s contact information is also used to contact the visitor when necessary. Users may opt out of receiving future mailings by contacting BEBRF.
This site contains links to other sites. BEBRF is not responsible for the privacy practices or the content of such linked websites.
Public Forums
This site may make chat rooms, forums, message boards, weblogs, and/or news groups available to its users. Please remember that any information that is disclosed in these areas becomes public information, and you should exercise caution when deciding to disclose your personal information.
Anything posted on social media by BEBRF, such as Facebook, is used with the permission of the subject of the post.
Security
This site has security measures in place to protect the loss, misuse, and alteration of the information under our control. We use industry-standard SSL encryption to scramble credit card information on the way from the donor to our server. Our servers are protected and require user authentication for access.