So many blepharospasm patients feel isolated and alone; they often think that no one understands what they are going through. BEBRF decided to share Patient Stories so that those patients would see that they are not alone. These stories vary widely, just like blepharospasm and blepharospasm patients. *We also have a limited supply of the book Patient Stories Vol. 2 in our store if you are interested in that. Feel free to share your story as well. Tell your Story My Blepharospasm Journey By Area Representative, Helene Lauffer In the Beginning In the beginning, I noticed only that my eyes...
2024 BEBRF Annual Symposium Location: Durham, North Carolina Venue: Albert Eye Research Institute Auditorium- Duke University Dates: Friday, November 1st - Saturday, November 2nd Join the BEBRF and Program Director Dr. Julie Woodward, MD for the 2024 Annual BEBRF Symposium in Durham, North Carolina where you can learn more about blepharospasm, Meige, and other related disorders. You will have the opportunity to hear from experts in the field, connect with other patients and caregivers, and participate in Q&A sessions. This is a free event. The symposium will take place at Duke University on Friday, November 1st – Saturday, November 2nd,...
Save the Date: 2024 BEBRF Symposium * Duke University, North Carolina * November 2, 2024 What is Blepharospasm? video popup Blepharo means “eyelid”. Spasm means “uncontrolled muscle contraction”. The term blepharospasm [blef-a-ro-spaz-m] can be applied to any abnormal blinking or eyelid tic or twitch resulting from any cause, ranging from dry eyes to Tourette’s syndrome to tardive dyskinesia. The blepharospasm referred to here is officially called benign essential blepharospasm (BEB) to distinguish it from the less serious secondary blinking disorders. “Benign” indicates the condition is not life-threatening, and “essential” is a medical term meaning “of unknown cause”. It is both...
Date: Wednesday, February 28, 2024 Time: 10:30 am, eastern Location: Zoom Please contact Jennifer Kawar for invitation instructions to the meeting. Contact Person: Jennifer Kawar Phone: 301-229-4038 Email: jennifer_kawar@yahoo.com
Date: Friday, April 12, 2024 Time: 11:00 am central Location: Zoom Please contact Carlas Powell for invitation instructions to the meeting. Contact Person: Carlas Powell Phone: 409-363-2206 Email: carlas.powell@gmail.com