Visit our Facebook Page The BEBRF Facebook page is a wonderful resource for those that like to use Facebook. If you “Like” and “Follow” our page, you will get notified when we add new Support Group Meetings and other events directly in your feed. We also share helpful hints, ways to talk to your doctor, articles from newsletters, ways to get involved to spread awareness or advocate, updates on research going on, and even clinical trials that become available to you.​ Facebook is also an easy way for you to help fundraise on behalf of BEBRF through Facebook fundraisers for...
Start a Support Group We need Support Group Leaders! Many patients have volunteered to be Support Group leaders. The BEBRF office provides help to train you, schedule any meetings and coordinates the invitations for patients in your area. We are happy to answer any questions you may have. Please share your experience and help a fellow patient! Please contact us if you can help us be a leader: bebrf@blepharospasm.org Get involved in a Clinical Trial On occasion, the Foundation will be asked to help with clinical trials that require blepharospasm patients’ participation. In those instances, the Foundation will publicize the...
Tell your story Share the story of your journey with blepharospasm and its related disorders by emailing BEBRF at bebrf@blepharospasm.org. Please also include a picture of yourself to accompany your story. By submitting a story, you acknowledge that you understand and agree that your story and the picture may be published on this website, on the BEBRF Facebook page, or in the Newsletter if it is selected for use. BEBRF reserves the right to edit your story for content and space. Also, if you love our work then tell the world! Stories about us from people like you will help...
Different ways to shop and support our mission. Shop Find a variety of articles, brochures, and other items. Shop our store Charitable Shopping Learn about different ways to shop online and support the BEBRF’s Mission. Learn More