Find the support you need At BEBRF, we support our patients and caregivers because we care. We offer support through hosting support group meetings, providing information on coping skills, sharing patients’ stories, giving you the ability to pose questions in “Ask the Doctor”, showing you how to obtain help from pharmaceutical companies, publishing information-packed quarterly Newsletters, and providing other resources including obtaining Social Security Disability. Support Groups Find a Support Group near you or just someone you can talk to if you need it. Learn more Coping Skills Tips and tricks to help you cope throughout the day. Learn more...
BEBRF maintains relationships with many renowned blepharospasm doctors to which we can refer patient questions. Here is where you will find an ever-changing group of questions and answers provided over the years. If you have a question for which you would like us to try and find an answer, please email bebrf@blepharospasm.org. If your question is selected and addressed from among the many we receive, the answer would appear below, on the BEBRF Facebook page, or in the Newsletter. Disclaimer: Neither the BEBRF nor members of the BEBRF Medical Advisory Board has examined these patients and are not responsible for...
Our History BEBRF began with a group of living room meetings in the spring of 1981 in the Beaumont, TX home of Founder Mattie Lou Koster. Frustrated because there was so much misinformation and very little knowledge or awareness about blepharospasm – even among medical practitioners, Mattie Lou was determined to make things better. After those initial meetings, BEBRF was formally chartered as a Texas non-profit corporation on July 23, 1981, and shortly thereafter the first Support Group Meeting was held in Tulsa, OK. On January 13, 1982, due to Mattie Lou’s persistence, the Wall Street Journal ran a front-page...