Please contact Charlene for invitation instructions to the meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org

Please contact Joanne for invitation instructions to the meeting. Contact Person: Joanne Matuzas Phone: 858-395-4609 Email: jmatuzas@aol.com

Please contact Cynthia for invitation instructions to the meeting. There are two different time options for a meeting this day.  Contact Person: Cynthia Clark Phone: 650-678-4132 Email: clark.cyl@gmail.com

Please contact Cynthia for invitation instructions to the meeting. There are two different time options for a meeting this day.  Contact Person: Cynthia Clark Phone: 650-678-4132 Email: clark.cyl@gmail.com

Location: Clarence's Steak & Seafood House 6636 Greensboro Rd Ridgeway, VA 24148 Contact Person: Peggy Gilley Phone: 276-956-3555

The PowerPoint decks from presentations made at the 2021 BEBRF Symposium in Philadelphia are now available online: Symposium PowerPoints

Please contact Ena for invitation instructions to the meeting. Speaker: Dr. Elizabeth Peckham Contact Person: Ena Wilmot Phone: 817-488-0445 Email: enamwa@hotmail.com

WE NEED YOUR HELP! Earlier this year several BEBRF patients participated in focus groups for a Patient-Centered Outcome (PCO) research project developing a phone app that will track the efficacy of botulinum toxin injections from injection cycle to injection cycle. The project has been created by Drs. Sarah Pirio Richardson (University of New Mexico) and […]

Please contact Sharon for invitation instructions to the meeting. Contact: Sharon West Tel: 817-297-4389 Email: swest124@swbell.net

The drug company ADDEX together with Dr. Buz Jinnah of Emory University (who serves on our MAB and the Medical and Scientific Advisory Council for DMRF) is launching a trial of a new class of medications known as allosteric modulators. The name of the drug they will use is dipraglurant. It is being studied for […]

Please contact Linda for invitation instructions to the meeting. Contact: Linda Trahan Tel: 214-563-7937 Email: linda.trahan@sbcglobal.net

The PowerPoint decks from the presentations are now available online at PowerPoints of presentations