You Can Participate in Research!

WE NEED YOUR HELP! Earlier this year several BEBRF patients participated in focus groups for a Patient-Centered Outcome (PCO) research project developing a phone app that will track the efficacy of botulinum toxin injections from injection cycle to injection cycle. The project has been created by Drs. Sarah Pirio Richardson (University of New Mexico) and […]

Cancelled

Zoom

Please contact Sharon for invitation instructions to the meeting. Contact: Sharon West Tel: 817-297-4389 Email: swest124@swbell.net

Participate in a Clinical Trial!

The drug company ADDEX together with Dr. Buz Jinnah of Emory University (who serves on our MAB and the Medical and Scientific Advisory Council for DMRF) is launching a trial of a new class of medications known as allosteric modulators. The name of the drug they will use is dipraglurant. It is being studied for […]

Northeast Texas November

Zoom

Please contact Linda for invitation instructions to the meeting. Contact: Linda Trahan Tel: 214-563-7937 Email: linda.trahan@sbcglobal.net

National Zoom Support Group Meeting

Zoom

Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 email: charlene@blepharospasm.org

National Zoom Support Group Meeting

Zoom

Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 email: charlene@blepharospasm.org

National Zoom Support Group Meeting

Zoom

Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 email: charlene@blepharospasm.org

Webinar – Surgical Procedures for Blepharospasm

Zoom

Thursday, January 27, 2022, at 1 pm central time.  Speaker is Dr. Julie Woodward.  Register on Zoom at https://us02web.zoom.us/webinar/register/WN_oFc5kT1GRZeM5ZWV-U8D0A

DFW Support Group Meeting

Zoom

THE MEETING DATE HAS CHANGED - NO LONGER ON THE 18TH. Please contact Ena for invitation instructions to the meeting. Contact: Ena Wilmot Tel: 817-488-0445 Email: enamwa@hotmail.com 

National Zoom Support Group Meeting

Zoom

Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

Pacific Northwest Support Group Meeting

Zoom

Please contact Peter for invitation instructions to the meeting. Contact: Peter Bakalor Tel: 206-219-9053 Email: pbakalor@outlook.com