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Find a Doctor
  • About
    • What is Blepharospasm?
    • Newly Diagnosed?
    • Signs & Symptoms
    • Genetics
  • Education
    • Medical Publications
    • Related Articles
    • Videos
    • Medical Glossary
    • FAQs
  • Treatments
    • Botulinum Toxin
    • Oral Medications
    • Surgery
    • Deep Brain Stimulation
    • Non - Surgical Aids
  • Related Disorders
    • Blepharitis
    • Dry Eye
    • Meige Syndrome – Oromandibular Dystonia
    • Hemifacial Spasm
    • Apraxia
    • Photophobia
    • Sjogren’s
    • Trichiasis
    • Eyelid Twitch
  • Injection Advice
    • Injections Tips
    • Injection Journal
    • Common Injection Patterns
    • More Frequent Injections
  • Support Groups
    • Submit Your Meeting
  • Coping Skills
  • Patient Stories
  • Ask the Doctor
  • Pharma Co Help
  • Newsletter
  • Other Resources
  • Bulletin Board
  • Testimonials
  • Apply for a Grant
  • Funded Research
  • Partnered Research
  • Dystonia Coalition Research
  • Volunteer
    • Start a Support Group
    • Get involved in a Clinical Trial
    • Donate your Brain for Research
    • Increase Awareness
    • Offer Your Expertise
  • Participate
    • Tell your Story
    • Advocate with us
    • Fundraise
  • Shop
    • Our Store
    • BEBRF Merchandise
    • Charitable Shopping
  • Ways to Help
    • Planned Giving
    • Employer Matching Donations
  • Mission
  • History
  • Our Impact
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  • Medical Advisory Board
  • Photos
  • Events Calendar
  • Symposium
  • Webinars
  • From the Executive Director
10 events found.

Events

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  • October 2021

  • Tue 12

    Presentations from the 2021 Symposium

    October 12, 2021 @ 8:00 am - 5:00 pm

    The PowerPoint decks from presentations made at the 2021 BEBRF Symposium in Philadelphia are now available online: Symposium PowerPoints

  • Tue 19

    Dallas, TX

    October 19, 2021 @ 12:00 pm - 2:00 pm
    Zoom

    Please contact Ena for invitation instructions to the meeting. Speaker: Dr. Elizabeth Peckham Contact Person: Ena Wilmot Phone: 817-488-0445 Email: enamwa@hotmail.com

  • Wed 27

    You Can Participate in Research!

    October 27, 2021 - November 16, 2021

    WE NEED YOUR HELP! Earlier this year several BEBRF patients participated in focus groups for a Patient-Centered Outcome (PCO) research project developing a phone app that will track the efficacy of botulinum toxin injections from injection cycle to injection cycle. The project has been created by Drs. Sarah Pirio Richardson (University of New Mexico) and […]

  • Wed 27

    Cancelled

    October 27, 2021 @ 1:30 pm - 3:30 pm
    Zoom

    Please contact Sharon for invitation instructions to the meeting. Contact: Sharon West Tel: 817-297-4389 Email: swest124@swbell.net

  • November 2021

  • Mon 1

    Participate in a Clinical Trial!

    November 1, 2021 - January 31, 2022

    The drug company ADDEX together with Dr. Buz Jinnah of Emory University (who serves on our MAB and the Medical and Scientific Advisory Council for DMRF) is launching a trial of a new class of medications known as allosteric modulators. The name of the drug they will use is dipraglurant. It is being studied for […]

  • Mon 15

    Northeast Texas November

    November 15, 2021 @ 11:00 am - 1:00 pm
    Zoom

    Please contact Linda for invitation instructions to the meeting. Contact: Linda Trahan Tel: 214-563-7937 Email: linda.trahan@sbcglobal.net

  • Tue 16

    Presentations from the 2021 Symposium

    November 16, 2021 - January 1, 2022

    The PowerPoint decks from the presentations are now available online at PowerPoints of presentations

  • Mon 29

    National Zoom Support Group Meeting

    November 29, 2021 @ 1:00 pm - 3:00 pm
    Zoom

    Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 email: charlene@blepharospasm.org

  • December 2021

  • Thu 16

    National Zoom Support Group Meeting

    December 16, 2021 @ 1:00 pm - 3:00 pm
    Zoom

    Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 email: charlene@blepharospasm.org

  • January 2022

  • Fri 21

    National Zoom Support Group Meeting

    January 21, 2022 @ 1:00 pm - 3:00 pm
    Zoom

    Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 email: charlene@blepharospasm.org

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Benign Essential Blepharospasm Research Foundation

409-832-0788 409-832-0890 bebrf@blepharospasm.org
PO Box 12468
Beaumont, TX 77726
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