Western District Contacts & SGL Meeting

Zoom

Please contact Cynthia for invitation instructions to the meeting. Contact: Cynthia Clark Tel: 650-678-4132 Email: clark.cyl@gmail.com

National Zoom Support Group Meeting

Zoom

The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

DFW Support Group Meeting

Zoom

Please contact Ena for invitation instructions to the meeting. Contact: Ena Wilmot Tel: 817-488-0445 Email: enamwa@hotmail.com 

Central Texas Support Group Meeting

Zoom

Please contact Carlas for invitation instructions to the meeting. Contact: Carlas Powell Tel: 409-363-2206 Email: carlas.powell@gmail.com

West DFW Texas Support Meeting

Zoom

Please contact Sharon for invitation instructions to the meeting. Contact: Sharon West Tel: 817-297-4389 Email: swest124@swbell.net

National Zoom Support Group Meeting

Zoom

The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

National Support Group Meeting

Zoom

The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

Northeast Texas Support Group Meeting

Zoom

The meeting is in held in Central Time Zone. Please contact Linda for invitation instructions to the meeting.  Contact:  Linda Trahan  Phone: 214-563-7937  E-mail: linda.trahan@sbcglobal.net

Free

UK Support Group Meeting

Zoom

The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

National Support Group Meeting

Zoom

The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

Eastern District Support Group Meeting

Zoom

This meeting is held in Eastern Time Zone. For residents of the following states: CT, DE, DC, FL, GA, MA, MD, ME, NH, NJ, NY, NC, PA, PR, RI, SC, VT, VA, WV. Please contact Bryan for invitation instructions to meeting. Contact Person: Bryan Renehan Phone: 301-461-0679 Email: bryan.renehan@gmail.com

National Support Group Meeting

Zoom

The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

Managing Dry Eye Webinar

Zoom

Join us on Friday, February 24th @ 1 pm central time, when we will be joined by presenter Rebecca Petris, Executive Director of the Dry Eye Foundation, to discuss practical applications for managing symptoms of dry eye.  If you are interested in viewing the webinar, please follow the 2 step process: 1) First, register for […]

FDA Rare Disease Day Virtual Event- “Intersections with Rare Diseases- A Patient-Focused Event”

Online

On February 27th, the Food and Drug Administration (FDA) of the US government will be holding a Virtual Event entitled “Intersections with Rare Diseases – A Patient-focused Event,” which will explore a range of topics related to rare diseases.             Participants will have the opportunity to: Hear directly from the FDA on initiatives to advance […]

NIH Rare Disease Day Event

Online

On February 28th, the National Institutes of Health (NIH)’s National Center for Advancing Translational Sciences (NCATS) will co-sponsor this year’s Rare Disease Day event at the NIH Clinical Center. This event aims to raise awareness about rare diseases, the people they affect, and NIH research collaborations that address scientific challenges and advance research for new […]

National Support Group Meeting

Zoom

The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

Central District Support Group Meeting

Zoom

This meeting is held in Eastern time zone. For residents of the following states: AL, AR, IL, IN, IA, KS, KY, LA, MI, MN, MS, MO, ND, OH, SD, TN, TX, WI Please contact Tishana Cundiff for invitation instructions to meeting. Contact Person: Tishana Cundiff Phone: 606-303-1132 Email: tishana333@yahoo.com      

National Support Group Meeting

Zoom

This meeting is held in central time. Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org    

West Dallas/Fort Worth, TX Support Group Meeting

Zoom

This meeting is held in Central Time Zone. Please contact Sharon for invitation instructions to meeting. Contact Person: Sharon West Phone: 817-297-4389 Email: swest124@swbell.net  

Support Group Meeting- Western District

Zoom

If you live in these states: AK, AZ, CA, CO, HI, ID, MT, NE, NV, NM, OK, OR, UT, WA, WY Please contact Cynthia for invitation instructions to the meeting.  This meeting will be held in Pacific Standard Time.

DFW Area Support Group Meeting (TX)

Zoom

This meeting is held in Central Time Zone. Please contact Ena for invitation instructions to meeting. Contact Person: Ena Wilmot Phone: 817-488-0445 Email: enamwa@hotmail.com 

National Support Group Meeting

Zoom

Please contact Charlene for invitation instructions to meeting.  This meeting is held in Central Standard Time.

National Support Group Meeting

Zoom

Please contact Charlene for invitation instructions to meeting.  This meeting is held in Central Standard Time.

National Support Group Meeting

Zoom

Date:  Friday, August 18, 2023 Time: 1 pm- 3 pm (Central Time) Location: Zoom Please contact Charlene for invitation instructions to meeting. Contact Person:  Charlene Hudgins Phone:  409.832.0788 Email:  charlene@blepharospasm.org  

Australia Support Group Meeting

Zoom

Date:  Monday, August 28, 2023 Time:  7pm Central Time Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact Person:  Charlene Hudgins Phone:  409.832.0788 Email:  charlene@blepharospasm.org

National Support Group Meeting

Zoom

Date:  Wednesday, September 13, 2023 Time:  1 pm- 3pm Central Time Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact Person:  Charlene Hudgins Phone:  409.832.0788 Email:  charlene@blepharospasm.org

Zoom! Houston TX Area Support Group Meeting

Zoom

Date:  Friday, September 15, 2023 Time:  1pm - 3pm central time Location:  Zoom (Please contact Carlas for invitation instructions to the meeting) Contact Person:  Carlas Powell Phone: 409-363-2206 Email:  carlas.powell@gmail.com

2023 Annual Symposium

Hyatt Regency St. Louis at the Arch

2023 BEBRF Annual Symposium Location: St. Louis, MO Venue: Hyatt Regency St. Louis at the Arch Dates: Friday, September 22nd – Saturday, September 23rd To make reservations in the discounted BEBRF room block at the Hyatt Regency St. Louis at the Arch, please click on this link: Benign Essential Blepharospasm Research Foundation 2023 Symposium (hyatt.com) Or call toll […]

United Kingdom Support Group Meeting

Zoom

Date:  Thursday, October 5, 2023 Time:  1pm-3pm Central Time Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact Person:  Charlene Hudgins Phone:  409.832.0788 Email:  charlene@blepharospasm.org

Greater Los Angeles Area Support Group Meeting

Zoom

Western District Greater Los Angeles Area Support Group Meeting Date:  Saturday, October 7, 2023 Time:  10 am, Pacific Time Location:  Zoom Please contact Cynthia Clark for invitation instructions to the meeting. Contact Person:  Cynthia Clark Phone:  650-678-4132 Email:  clark.cyl@gmail.com

Greater Los Angeles Area Support Group Meeting

Walter's Restaurant 310 Yale Ave, Claremont, CA, United States

Greater Los Angeles Area Date:  Saturday, October 7, 2023 Time: 4:30 Pacific Location:  Walter's Restaurant- 310 Yale Ave  Claremont, CA 91711 Contact Person:  Cynthia Clark Phone:  650.678.4132 Email:  clark.cyl@gmail.com  

Dallas-Fort Worth Support Group Meeting

Zoom

Tuesday, October 17 2023 Time:  Noon- 2 pm This meeting is held in Central Time Zone. Location: Zoom Please contact Ena for invitation instructions to meeting. Contact Person:  Ena Wilmot Phone:  817-488-0445 Email:  enamwa@hotmail.com

National Support Group Meeting

Zoom

Date:  Friday, October 20, 2023 Time:  1pm-3pm Central Time Location:  Zoom Please contact Charlene for invitation instructions to the meeting. Contact Person:  Charlene Hudgins Phone:  409.832.0788 Email:  charlene@blepharospasm.org  

Washington DC Support Group Meeting

Zoom

Date:  Wednesday, October 25, 2023 Time:  10:30 am, Eastern Location:  Zoom Please contact Jennifer Kawar for invitation instructions to the meeting. Contact Person:  Jennifer Kawar Phone:  301.229.4038 Email:  jennifer_kawar@yahoo.com

Western District Support Group Meeting

Zoom

Date:  Thursday, November 9, 2023 Time:  3pm, Pacific Location:  Zoom Please contact Cynthia Clark for invitation instructions to the meeting. Contact Person:  Cynthia Clark Phone:  650.678.4132 Email:  clark@cyl@gmail.com  

New York City Support Group Meeting

Zoom

Date:  Sunday, November 12, 2023 Time:  11am, Central Location:  Zoom Please contact Helene Lauffer for invitation instructions to the meeting. Contact Person:  Helene Lauffer Phone:  212-496-0294 or 917-544-4307 Email:  hlauffer@earthlink.net  

Australia Support Group Meeting

Zoom

Date:  Monday, November 13, 2023 Time:  7 pm Central Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact Person:  Charlene Hudgins Phone:  409-832-0788 Email: charlene@blepharospasm.org

Washington DC Support Group Meeting

Zoom

Date:  Wednesday, November 15, 2023 Time:  10:30 am, Eastern Location:  Zoom Please contact Jennifer Kawar for invitation instructions to meeting. Contact Person:  Jennifer Kawar Phone:  301-229-4038 Email:  jennifer_kawar@yahoo.com  

NATIONAL Support Group Meeting

Zoom

Date:  Thursday, November 16, 2023 Time 1pm-3pm Central Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact Person:  Charlene Hudgins Phone:  409-832-0788 Email:  charlene@blepharospasm.org  

Washington DC Zoom! Support Group Meeting

Zoom

Date: Wednesday, November 29, 2023 Time:  10:30 am, eastern time Location:  Zoom Please contact Jennifer Kawar for invitation instructions to meeting. Contact Person:  Jennifer Kawar Phone:  301-229-4038 Email:  jennifer_kawar@yahoo.com  

NATIONAL Support Group Meeting

Zoom

Date:  Monday, December 11, 2023 Time: 1pm-3pm Central Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact Person:  Charlene Hudgins Phone:  409-832-0788 Email:  charlene@blepharospasm.org

Western District Support Group Meeting

Zoom

Date:  Wednesday, January 10, 2024 Time:  3 pm, Pacific Location:  Zoom Please contact Cynthia Clark for invitation instructions to the meeting. Contact Person:  Cynthia Clark Phone:  650-678-4132 Email:  clark.cyl@gmail.com

NATIONAL Support Group Meeting

Zoom

Date:  Wednesday, January 17, 2024 Time:  1pm-3pm central  Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email:  charlene@blepharospasm.org

GREATER WASHINGTON, DC AREA Zoom! Online Support Group Meeting

Zoom

GREATER WASHINGTON, DC AREA Zoom! Online Support Group Meeting January 24 @ 10:30 am Date:  Wednesday, January 24 Time:  10:30 am  Location:  Zoom Please contact Jennifer Kawar for invitation instructions to meeting. Contact Person: Jennifer Kawar Tel: 301-229-4038 E-mail: jennifer_kawar@yahoo.com

EAST BAY AREA Zoom! Support Group Meeting

Zoom

Date:  Saturday, February 17, 2024 Time:  1 pm Pacific  Location:  Zoom Please contact Sherwin Low for invitation instructions to the meeting. Contact Person:  Sherwin Low Phone:  510-914-6377 Email:  Sherwincell@gmail.com  

GREATER SEATTLE AREA Live! Support Group Meeting

Shoreline Library 345 175th St., Shoreline, WA, United States

Date:  Saturday, February 18, 2024 Time:  2 pm Location:  Shoreline Library, 345 175th St. Shoreline, WA 98155 Please contact Peter Bakalor for invitation instructions to meeting. Contact Person: Peter Bakalor Tel: 206-219-9053 Email:  pbakalor@outlook.com

NATIONAL Zoom! Support Group Meeting

Zoom

Date:  Friday, February 23, 2024 Time:  1pm-3pm central Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact:  Charlene Hudgins Phone:  409-832-0788 Email:  charlene@blepharospasm.org

GREATER WASHINGTON DC AREA Zoom! Support Group Meeting

Zoom

Date:  Wednesday, February 28, 2024 Time: 10:30 am, eastern Location:  Zoom Please contact Jennifer Kawar for invitation instructions to the meeting. Contact Person:  Jennifer Kawar Phone:  301-229-4038 Email:  jennifer_kawar@yahoo.com

NATIONAL Zoom! Support Group Meeting

Zoom

Date:  Thursday, March 14, 2024 Time: 1pm-3pm central Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact Person:  Charlene Hudgins Phone: 409-832-0788 Email:  charlene@blepharospasm.org

Greater WASHINGTON, DC Area Zoom! Support Group

Zoom

Date: Wednesday, March 27, 2024 Time:  10:30 am - 12:30 pm eastern Location:  Zoom Please contact Jennifer for invitation instructions to meeting. Contact Person:  Jennifer Kawar Tel: 301-229-4038 E-mail: jennifer_kawar@yahoo.com    

HOUSTON AREA Zoom! Support Group Meeting

Zoom

Date:  Friday, April 12, 2024 Time:  11:00 am central Location:  Zoom Please contact Carlas Powell for invitation instructions to the meeting. Contact Person:  Carlas Powell Phone:  409-363-2206 Email:  carlas.powell@gmail.com

NATIONAL Zoom! Support Group Meeting

Zoom

Date:  Tuesday, April 16, 2024 Time:  1pm-3pm central Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact Person:  Charlene Hudgins Phone:  409-832-0788 Email:  charlene@blepharospasm.org

NATIONAL Zoom! Support Group Meeting

Zoom

Date:  Monday, May 20, 2024 Time:  1pm-3pm central Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact Person:  Charlene Hudgins Phone:  409-832-0788 Email:  charlene@blepharospasm.org  

NATIONAL Zoom! Support Group Meeting

Zoom

NATIONAL Zoom! Support Group Meeting Date:  Wednesday, June 12, 2024 Time:  1pm-3pm central time Location:  Zoom Please contact Charlene for invitation instructions to the meeting. Contact Person:  Charlene Hudgins Phone:  409-832-0788 Email:  charlene@blepharospasm.org

DALLAS/FORT WORTH AREA Zoom! Support Group Meeting

Zoom

Date:  Tuesday, June 18, 2024 Time:  Noon, Central Time Location:  Zoom Please contact Ena Wilmot for invitation instructions to the meeting. Contact Person:  Ena Wilmot Phone:  817-488-0445 Email: enamwa@hotmail.com

UK Zoom! Support Group Meeting

Zoom

UK Zoom! Support Group Meeting Date: Thursday, June 20, 2024 Time:  1pm-3pm United States central time Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact Person:  Charlene Hudgins Phone:  409-832-0788

NATIONAL Zoom! Support Group Meeting

Zoom

NATIONAL Zoom! Support Group Meeting Date:  Friday, July 12, 2024 Time:  1pm-3pm central time Location:  Zoom Please contact Charlene for invitation instructions to the meeting. Contact Person:  Charlene Hudgins Phone:  409-832-0788 Email:  charlene@blepharospasm.org

GREATER WASHINGTON DC AREA Zoom! Support Group Meeting

Zoom

GREATER WASHINGTON AREA Zoom! Support Group Meeting Date: Wednesday, July 24, 2024 Time: 10:30 am eastern Location: Zoom Please contact Jennifer for invitation instructions to the meeting. Contact Person: Jennifer Kawar Phone: 301-229-4038 Email: jennifer.kawar@yahoo.com

TARRANT/PARKER COUNTIES, TX Zoom! Support Group Meeting

Zoom

Date:  Tuesday, August 13, 2024 Time:  Noon, central time Location:  Zoom Please contact Sharon West for invitation instructions to the meeting. Contact Person:  Sharon West Phone: 817-297-4389 Email: swest124@swbell.net

NATIONAL Zoom! Support Group Meeting

Zoom

NATIONAL Zoom! Support Group Meeting Date:  Friday, August 16, 2024 Time:  1pm-3pm central time Location:  Zoom Please contact Charlene for invitation instructions to the meeting. Contact Person:  Charlene Hudgins Phone:  409-832-0788 Email:  charlene@blepharospasm.org

AUSTRALIA & NEW ZEALAND Support Group Meeting

Zoom

Australia & New Zealand Support Group Meeting Date:  Monday, August 26, 2024 Time:  8:00 pm, central time in US Tuesday Morning in Australia and NZ. Location:  Zoom Contact Person:  Charlene Hudgins for Zoom link, James Kerr for your time zone's start time. Email:  For Charlene:  charlene@blepharospasm.org; For James: jameskerrfs@bigpond.com  

WESTERN DISTRICT Zoom! Support Group Meeting

Zoom

WESTERN DISTRICT Zoom! Support Group Meeting Date:  Thursday, August 29, 2024 Time:  2:30 pm, Pacific time Location:  Zoom Please contact Cynthia for invitation instructions to the meeting. Contact Person:  Cynthia Clark Phone:  650-678-4132 Email: clark.cyl@gmail.com  

GREATER LOS ANGELES Live! Support Group Meeting

Walter's Restaurant 310 Yale Ave, Claremont, CA, United States

GREATER LOS ANGELES Live! Support Group Meeting Date:  Saturday, September 7, 2024 Time:  4:30 pm, Pacific Location:  Walter's Restaurant, Claremont, CA Please contact Cynthia for invitation instructions to meeting. Contact Person:  Cynthia Clark Phone:  650-678-4132 Email:  clark.cyl@gmail.com  

NATIONAL Zoom! Support Group Meeting

Zoom

NATIONAL Zoom! Support Group Meeting Date:  Thursday, September 19, 2024 Time:  1pm-3pm central time Location:  Zoom Please contact Charlene for invitation instructions to the meeting. Contact Person:  Charlene Hudgins Phone:  409-832-0788 Email: charlene@blepharospasm.org  

NATIONAL Zoom! Support Group Meeting

Zoom

NATIONAL Zoom! Support Group Meeting Date:  Thursday, October 10, 2024 Time:  1pm-3pm central time Location:  Zoom Please contact Charlene for invitation instructions to the meeting. Contact Person:  Charlene Hudgins Phone:  409-832-0788 Email: charlene@blepharospasm.org  

DALLAS/FORT WORTH AREA Zoom! Support Group Meeting

Zoom

Date:  Tuesday, October 15, 2024 Time:  12 noon-2pm central Location:  Zoom Please contact Ena Wilmot for invitation instructions to meeting. Contact Person:  Ena Wilmot Phone:  817-488-0445 Email:  enamwa@hotmail.com

WESTERN DISTRICT Zoom! Support Group Meeting

Zoom

Western District Zoom! Support Group Meeting Date:  Thursday, October 24, 2024 Time:  2:30 pm, Pacific time Location:  Zoom Please contact Cynthia for invitation instructions to the meeting. Contact Person:  Cynthia Clark Phone:  650-678-4132 Email: clark.cyl@gmail.com

NATIONAL Zoom! Support Group Meeting

Zoom

NATIONAL Zoom! Support Group Meeting Date:  Monday, November 18, 2024 Time:  1pm-3pm central time Location:  Zoom Please contact Charlene for invitation instructions to the meeting. Contact Person:  Charlene Hudgins Phone:  409-832-0788 Email:  charlene@blepharospasm.org

NORTHEAST TEXAS Live! Support Group Meeting

Northeast Texas Support Group Meeting 1215 E. Yellow Jacket Ln., Rockwall, TX, United States

Date:  December 10, 2024 Time:  12 pm central Location:  1215 E. Yellow Jacket Ln.                     Rockwall, TX 75087 Contact Person:  Linda Trahan Phone:  214-563-7937 Email:  linda.trahan@sbcglobal.net    

GREATER LOS ANGELES Live! Support Group Meeting

Euro Cafe 546 E. Baseline Rd, Claremont, CA, United States

GREATER LOS ANGELES Live! Support Group Meeting Date:  Satuday, December 14th, 2024 Time:  10 am, Pacific time Location:  Euro Cafe, Baseline Rd & Mills Ave, Claremont, CA Please contact Cynthia for invitation instructions to the meeting. Contact Person:  Cynthia Clark Phone:  650-678-4132 Email: clark.cyl@gmail.com