On February 27th, the Food and Drug Administration (FDA) of the US government will be holding a Virtual Event entitled “Intersections with Rare Diseases – A Patient-focused Event,” which will explore a range of topics related to rare diseases. Participants will have the opportunity to: Hear directly from the FDA on initiatives to advance […]
On February 28th, the National Institutes of Health (NIH)’s National Center for Advancing Translational Sciences (NCATS) will co-sponsor this year’s Rare Disease Day event at the NIH Clinical Center. This event aims to raise awareness about rare diseases, the people they affect, and NIH research collaborations that address scientific challenges and advance research for new […]
The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org
This meeting is held in Eastern time zone. For residents of the following states: AL, AR, IL, IN, IA, KS, KY, LA, MI, MN, MS, MO, ND, OH, SD, TN, TX, WI Please contact Tishana Cundiff for invitation instructions to meeting. Contact Person: Tishana Cundiff Phone: 606-303-1132 Email: tishana333@yahoo.com
This meeting is held in central time. Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org
This meeting is held in Central Time Zone. Please contact Sharon for invitation instructions to meeting. Contact Person: Sharon West Phone: 817-297-4389 Email: swest124@swbell.net
Please contact Helene for invitation instructions to the meeting. This meeting will be held in Eastern Standard Time.
If you live in these states: AK, AZ, CA, CO, HI, ID, MT, NE, NV, NM, OK, OR, UT, WA, WY Please contact Cynthia for invitation instructions to the meeting. This meeting will be held in Pacific Standard Time.
Please contact Charlene for invitation instructions to meeting. This meeting is held is Central Standard Time.
This meeting is held in Central Time Zone. Please contact Ena for invitation instructions to meeting. Contact Person: Ena Wilmot Phone: 817-488-0445 Email: enamwa@hotmail.com
Please contact Charlene for invitation instructions to meeting. This meeting is held in Central Standard Time.
Please contact Charlene for invitation instructions to meeting. This meeting is held in Central Standard Time.
Date: Friday, August 18, 2023 Time: 1 pm- 3 pm (Central Time) Location: Zoom Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409.832.0788 Email: charlene@blepharospasm.org
Date: Monday, August 28, 2023 Time: 7pm Central Time Location: Zoom Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409.832.0788 Email: charlene@blepharospasm.org
Date: Wednesday, September 13, 2023 Time: 1 pm- 3pm Central Time Location: Zoom Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409.832.0788 Email: charlene@blepharospasm.org
Date: Friday, September 15, 2023 Time: 1pm - 3pm central time Location: Zoom (Please contact Carlas for invitation instructions to the meeting) Contact Person: Carlas Powell Phone: 409-363-2206 Email: carlas.powell@gmail.com
2023 BEBRF Annual Symposium Location: St. Louis, MO Venue: Hyatt Regency St. Louis at the Arch Dates: Friday, September 22nd – Saturday, September 23rd To make reservations in the discounted BEBRF room block at the Hyatt Regency St. Louis at the Arch, please click on this link: Benign Essential Blepharospasm Research Foundation 2023 Symposium (hyatt.com) Or call toll […]
Date: Thursday, October 5, 2023 Time: 1pm-3pm Central Time Location: Zoom Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409.832.0788 Email: charlene@blepharospasm.org
Western District Greater Los Angeles Area Support Group Meeting Date: Saturday, October 7, 2023 Time: 10 am, Pacific Time Location: Zoom Please contact Cynthia Clark for invitation instructions to the meeting. Contact Person: Cynthia Clark Phone: 650-678-4132 Email: clark.cyl@gmail.com
Greater Los Angeles Area Date: Saturday, October 7, 2023 Time: 4:30 Pacific Location: Walter's Restaurant- 310 Yale Ave Claremont, CA 91711 Contact Person: Cynthia Clark Phone: 650.678.4132 Email: clark.cyl@gmail.com
Tuesday, October 17 2023 Time: Noon- 2 pm This meeting is held in Central Time Zone. Location: Zoom Please contact Ena for invitation instructions to meeting. Contact Person: Ena Wilmot Phone: 817-488-0445 Email: enamwa@hotmail.com
Date: Friday, October 20, 2023 Time: 1pm-3pm Central Time Location: Zoom Please contact Charlene for invitation instructions to the meeting. Contact Person: Charlene Hudgins Phone: 409.832.0788 Email: charlene@blepharospasm.org
Date: Wednesday, October 25, 2023 Time: 10:30 am, Eastern Location: Zoom Please contact Jennifer Kawar for invitation instructions to the meeting. Contact Person: Jennifer Kawar Phone: 301.229.4038 Email: jennifer_kawar@yahoo.com
Date: Thursday, November 9, 2023 Time: 3pm, Pacific Location: Zoom Please contact Cynthia Clark for invitation instructions to the meeting. Contact Person: Cynthia Clark Phone: 650.678.4132 Email: clark@cyl@gmail.com
Date: Sunday, November 12, 2023 Time: 11am, Central Location: Zoom Please contact Helene Lauffer for invitation instructions to the meeting. Contact Person: Helene Lauffer Phone: 212-496-0294 or 917-544-4307 Email: hlauffer@earthlink.net
Date: Monday, November 13, 2023 Time: 7 pm Central Location: Zoom Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org
Date: Wednesday, November 15, 2023 Time: 10:30 am, Eastern Location: Zoom Please contact Jennifer Kawar for invitation instructions to meeting. Contact Person: Jennifer Kawar Phone: 301-229-4038 Email: jennifer_kawar@yahoo.com
Date: Thursday, November 16, 2023 Time 1pm-3pm Central Location: Zoom Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org
Date: Wednesday, November 29, 2023 Time: 10:30 am, eastern time Location: Zoom Please contact Jennifer Kawar for invitation instructions to meeting. Contact Person: Jennifer Kawar Phone: 301-229-4038 Email: jennifer_kawar@yahoo.com
Date: Monday, December 11, 2023 Time: 1pm-3pm Central Location: Zoom Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org
Date: Wednesday, January 10, 2024 Time: 3 pm, Pacific Location: Zoom Please contact Cynthia Clark for invitation instructions to the meeting. Contact Person: Cynthia Clark Phone: 650-678-4132 Email: clark.cyl@gmail.com
Date: Wednesday, January 17, 2024 Time: 1pm-3pm central Location: Zoom Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org
GREATER WASHINGTON, DC AREA Zoom! Online Support Group Meeting January 24 @ 10:30 am Date: Wednesday, January 24 Time: 10:30 am Location: Zoom Please contact Jennifer Kawar for invitation instructions to meeting. Contact Person: Jennifer Kawar Tel: 301-229-4038 E-mail: jennifer_kawar@yahoo.com
Date: Saturday, February 17, 2024 Time: 1 pm Pacific Location: Zoom Please contact Sherwin Low for invitation instructions to the meeting. Contact Person: Sherwin Low Phone: 510-914-6377 Email: Sherwincell@gmail.com
Date: Saturday, February 18, 2024 Time: 2 pm Location: Shoreline Library, 345 175th St. Shoreline, WA 98155 Please contact Peter Bakalor for invitation instructions to meeting. Contact Person: Peter Bakalor Tel: 206-219-9053 Email: pbakalor@outlook.com
Date: Friday, February 23, 2024 Time: 1pm-3pm central Location: Zoom Please contact Charlene for invitation instructions to meeting. Contact: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org
Date: Wednesday, February 28, 2024 Time: 10:30 am, eastern Location: Zoom Please contact Jennifer Kawar for invitation instructions to the meeting. Contact Person: Jennifer Kawar Phone: 301-229-4038 Email: jennifer_kawar@yahoo.com
Date: Thursday, March 14, 2024 Time: 1pm-3pm central Location: Zoom Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org
Date: Wednesday, March 27, 2024 Time: 10:30 am - 12:30 pm eastern Location: Zoom Please contact Jennifer for invitation instructions to meeting. Contact Person: Jennifer Kawar Tel: 301-229-4038 E-mail: jennifer_kawar@yahoo.com
Date: Friday, April 12, 2024 Time: 11:00 am central Location: Zoom Please contact Carlas Powell for invitation instructions to the meeting. Contact Person: Carlas Powell Phone: 409-363-2206 Email: carlas.powell@gmail.com
Date: Tuesday, April 16, 2024 Time: 1pm-3pm central Location: Zoom Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org
Date: Monday, May 20, 2024 Time: 1pm-3pm central Location: Zoom Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org
NATIONAL Zoom! Support Group Meeting Date: Wednesday, June 12, 2024 Time: 1pm-3pm central time Location: Zoom Please contact Charlene for invitation instructions to the meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org
Date: Tuesday, June 18, 2024 Time: Noon, Central Time Location: Zoom Please contact Ena Wilmot for invitation instructions to the meeting. Contact Person: Ena Wilmot Phone: 817-488-0445 Email: enamwa@hotmail.com
UK Zoom! Support Group Meeting Date: Thursday, June 20, 2024 Time: 1pm-3pm United States central time Location: Zoom Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788
NATIONAL Zoom! Support Group Meeting Date: Friday, July 12, 2024 Time: 1pm-3pm central time Location: Zoom Please contact Charlene for invitation instructions to the meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org
GREATER WASHINGTON AREA Zoom! Support Group Meeting Date: Wednesday, July 24, 2024 Time: 10:30 am eastern Location: Zoom Please contact Jennifer for invitation instructions to the meeting. Contact Person: Jennifer Kawar Phone: 301-229-4038 Email: jennifer.kawar@yahoo.com
Date: Tuesday, August 13, 2024 Time: Noon, central time Location: Zoom Please contact Sharon West for invitation instructions to the meeting. Contact Person: Sharon West Phone: 817-297-4389 Email: swest124@swbell.net
NATIONAL Zoom! Support Group Meeting Date: Friday, August 16, 2024 Time: 1pm-3pm central time Location: Zoom Please contact Charlene for invitation instructions to the meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org
Australia & New Zealand Support Group Meeting Date: Monday, August 26, 2024 Time: 8:00 pm, central time in US Tuesday Morning in Australia and NZ. Location: Zoom Contact Person: Charlene Hudgins for Zoom link, James Kerr for your time zone's start time. Email: For Charlene: charlene@blepharospasm.org; For James: jameskerrfs@bigpond.com
WESTERN DISTRICT Zoom! Support Group Meeting Date: Thursday, August 29, 2024 Time: 2:30 pm, Pacific time Location: Zoom Please contact Cynthia for invitation instructions to the meeting. Contact Person: Cynthia Clark Phone: 650-678-4132 Email: clark.cyl@gmail.com
GREATER LOS ANGELES Live! Support Group Meeting Date: Saturday, September 7, 2024 Time: 4:30 pm, Pacific Location: Walter's Restaurant, Claremont, CA Please contact Cynthia for invitation instructions to meeting. Contact Person: Cynthia Clark Phone: 650-678-4132 Email: clark.cyl@gmail.com
NATIONAL Zoom! Support Group Meeting Date: Thursday, September 19, 2024 Time: 1pm-3pm central time Location: Zoom Please contact Charlene for invitation instructions to the meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org
NATIONAL Zoom! Support Group Meeting Date: Thursday, October 10, 2024 Time: 1pm-3pm central time Location: Zoom Please contact Charlene for invitation instructions to the meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org
Date: Tuesday, October 15, 2024 Time: 12 noon-2pm central Location: Zoom Please contact Ena Wilmot for invitation instructions to meeting. Contact Person: Ena Wilmot Phone: 817-488-0445 Email: enamwa@hotmail.com
Western District Zoom! Support Group Meeting Date: Thursday, October 24, 2024 Time: 2:30 pm, Pacific time Location: Zoom Please contact Cynthia for invitation instructions to the meeting. Contact Person: Cynthia Clark Phone: 650-678-4132 Email: clark.cyl@gmail.com
NATIONAL Zoom! Support Group Meeting Date: Monday, November 18, 2024 Time: 1pm-3pm central time Location: Zoom Please contact Charlene for invitation instructions to the meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org
Date: December 11, 2024 Time: 12 pm central Location: Plano, TX Contact Person: Linda Trahan Phone: 214-563-7937 Email: linda.trahan@sbcglobal.net Contact Linda for directions to the meeting.
GREATER LOS ANGELES Live! Support Group Meeting Date: Satuday, December 14th, 2024 Time: 10 am, Pacific time Location: Euro Cafe, Baseline Rd & Mills Ave, Claremont, CA Please contact Cynthia for invitation instructions to the meeting. Contact Person: Cynthia Clark Phone: 650-678-4132 Email: clark.cyl@gmail.com
NATIONAL Zoom! Support Group Meeting Date: Tuesday, December 17, 2024 Time: 1pm-3pm central time Location: Zoom Please contact Charlene for invitation instructions to the meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org
Washington, DC Zoom! Support Group Meeting Date: Wednesday, January 8, 2025 Time: 2pm-4pm eastern time Location: Zoom Please contact Jennifer Kawar for invitation instructions to the meeting. Contact Person: Jennifer Kawar Phone: 301-229-4038 Email: jennifer_kawar@yahoo.com
National Zoom! Support Group Meeting Date: Wednesday, January 15, 2025 Time: 1pm-3pm central time Location: Zoom Please contact Charlene for invitation instructions to the meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org
National Zoom! Support Group Meeting Date: Monday, February 17, 2025 Time: 1pm-3pm central time Location: Zoom Please contact Charlene for invitation instructions to the meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org
Tarrant-Parker County Zoom! Support Group Meeting Date: Tuesday, February 25, 2025 Time: Noon-2pm central time Location: Zoom Please contact Sharon West for invitation instructions to the meeting. Contact Person: Sharon West Phone: (817) 991-5584 E-mail: swest124@swbell.net