The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

The meeting is in held in Central Time Zone. Please contact Linda for invitation instructions to the meeting.  Contact:  Linda Trahan  Phone: 214-563-7937  E-mail: linda.trahan@sbcglobal.net

The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

This meeting is held in Eastern Time Zone. For residents of the following states: CT, DE, DC, FL, GA, MA, MD, ME, NH, NJ, NY, NC, PA, PR, RI, SC, VT, VA, WV. Please contact Bryan for invitation instructions to meeting. Contact Person: Bryan Renehan Phone: 301-461-0679 Email: bryan.renehan@gmail.com

The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

Join us on Friday, February 24th @ 1 pm central time, when we will be joined by presenter Rebecca Petris, Executive Director of the Dry Eye Foundation, to discuss practical applications for managing symptoms of dry eye.  If you are interested in viewing the webinar, please follow the 2 step process: 1) First, register for […]

On February 27th, the Food and Drug Administration (FDA) of the US government will be holding a Virtual Event entitled “Intersections with Rare Diseases – A Patient-focused Event,” which will explore a range of topics related to rare diseases.             Participants will have the opportunity to: Hear directly from the FDA on initiatives to advance […]

On February 28th, the National Institutes of Health (NIH)’s National Center for Advancing Translational Sciences (NCATS) will co-sponsor this year’s Rare Disease Day event at the NIH Clinical Center. This event aims to raise awareness about rare diseases, the people they affect, and NIH research collaborations that address scientific challenges and advance research for new […]

The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

This meeting is held in Eastern time zone. For residents of the following states: AL, AR, IL, IN, IA, KS, KY, LA, MI, MN, MS, MO, ND, OH, SD, TN, TX, WI Please contact Tishana Cundiff for invitation instructions to meeting. Contact Person: Tishana Cundiff Phone: 606-303-1132 Email: tishana333@yahoo.com      

This meeting is held in central time. Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org    

This meeting is held in Central Time Zone. Please contact Sharon for invitation instructions to meeting. Contact Person: Sharon West Phone: 817-297-4389 Email: swest124@swbell.net  

Please contact Helene for invitation instructions to the meeting.  This meeting will be held in Eastern Standard Time.

If you live in these states: AK, AZ, CA, CO, HI, ID, MT, NE, NV, NM, OK, OR, UT, WA, WY Please contact Cynthia for invitation instructions to the meeting.  This meeting will be held in Pacific Standard Time.

Please contact Charlene for invitation instructions to meeting.  This meeting is held is Central Standard Time.

This meeting is held in Central Time Zone. Please contact Ena for invitation instructions to meeting. Contact Person: Ena Wilmot Phone: 817-488-0445 Email: enamwa@hotmail.com 

Please contact Charlene for invitation instructions to meeting.  This meeting is held in Central Standard Time.

Please contact Charlene for invitation instructions to meeting.  This meeting is held in Central Standard Time.

Date:  Friday, August 18, 2023 Time: 1 pm- 3 pm (Central Time) Location: Zoom Please contact Charlene for invitation instructions to meeting. Contact Person:  Charlene Hudgins Phone:  409.832.0788 Email:  charlene@blepharospasm.org  

Date:  Monday, August 28, 2023 Time:  7pm Central Time Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact Person:  Charlene Hudgins Phone:  409.832.0788 Email:  charlene@blepharospasm.org

Date:  Wednesday, September 13, 2023 Time:  1 pm- 3pm Central Time Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact Person:  Charlene Hudgins Phone:  409.832.0788 Email:  charlene@blepharospasm.org

Date:  Friday, September 15, 2023 Time:  1pm - 3pm central time Location:  Zoom (Please contact Carlas for invitation instructions to the meeting) Contact Person:  Carlas Powell Phone: 409-363-2206 Email:  carlas.powell@gmail.com

2023 BEBRF Annual Symposium Location: St. Louis, MO Venue: Hyatt Regency St. Louis at the Arch Dates: Friday, September 22nd – Saturday, September 23rd To make reservations in the discounted BEBRF room block at the Hyatt Regency St. Louis at the Arch, please click on this link: Benign Essential Blepharospasm Research Foundation 2023 Symposium (hyatt.com) Or call toll […]

Date:  Thursday, October 5, 2023 Time:  1pm-3pm Central Time Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact Person:  Charlene Hudgins Phone:  409.832.0788 Email:  charlene@blepharospasm.org

Western District Greater Los Angeles Area Support Group Meeting Date:  Saturday, October 7, 2023 Time:  10 am, Pacific Time Location:  Zoom Please contact Cynthia Clark for invitation instructions to the meeting. Contact Person:  Cynthia Clark Phone:  650-678-4132 Email:  clark.cyl@gmail.com

Greater Los Angeles Area Date:  Saturday, October 7, 2023 Time: 4:30 Pacific Location:  Walter's Restaurant- 310 Yale Ave  Claremont, CA 91711 Contact Person:  Cynthia Clark Phone:  650.678.4132 Email:  clark.cyl@gmail.com  

Tuesday, October 17 2023 Time:  Noon- 2 pm This meeting is held in Central Time Zone. Location: Zoom Please contact Ena for invitation instructions to meeting. Contact Person:  Ena Wilmot Phone:  817-488-0445 Email:  enamwa@hotmail.com

Date:  Friday, October 20, 2023 Time:  1pm-3pm Central Time Location:  Zoom Please contact Charlene for invitation instructions to the meeting. Contact Person:  Charlene Hudgins Phone:  409.832.0788 Email:  charlene@blepharospasm.org  

Date:  Wednesday, October 25, 2023 Time:  10:30 am, Eastern Location:  Zoom Please contact Jennifer Kawar for invitation instructions to the meeting. Contact Person:  Jennifer Kawar Phone:  301.229.4038 Email:  jennifer_kawar@yahoo.com

Date:  Thursday, November 9, 2023 Time:  3pm, Pacific Location:  Zoom Please contact Cynthia Clark for invitation instructions to the meeting. Contact Person:  Cynthia Clark Phone:  650.678.4132 Email:  clark@cyl@gmail.com  

Date:  Sunday, November 12, 2023 Time:  11am, Central Location:  Zoom Please contact Helene Lauffer for invitation instructions to the meeting. Contact Person:  Helene Lauffer Phone:  212-496-0294 or 917-544-4307 Email:  hlauffer@earthlink.net  

Date:  Monday, November 13, 2023 Time:  7 pm Central Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact Person:  Charlene Hudgins Phone:  409-832-0788 Email: charlene@blepharospasm.org

Date:  Wednesday, November 15, 2023 Time:  10:30 am, Eastern Location:  Zoom Please contact Jennifer Kawar for invitation instructions to meeting. Contact Person:  Jennifer Kawar Phone:  301-229-4038 Email:  jennifer_kawar@yahoo.com  

Date:  Thursday, November 16, 2023 Time 1pm-3pm Central Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact Person:  Charlene Hudgins Phone:  409-832-0788 Email:  charlene@blepharospasm.org  

Date: Wednesday, November 29, 2023 Time:  10:30 am, eastern time Location:  Zoom Please contact Jennifer Kawar for invitation instructions to meeting. Contact Person:  Jennifer Kawar Phone:  301-229-4038 Email:  jennifer_kawar@yahoo.com  

Date:  Monday, December 11, 2023 Time: 1pm-3pm Central Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact Person:  Charlene Hudgins Phone:  409-832-0788 Email:  charlene@blepharospasm.org

Date:  Wednesday, January 10, 2024 Time:  3 pm, Pacific Location:  Zoom Please contact Cynthia Clark for invitation instructions to the meeting. Contact Person:  Cynthia Clark Phone:  650-678-4132 Email:  clark.cyl@gmail.com

Date:  Wednesday, January 17, 2024 Time:  1pm-3pm central  Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email:  charlene@blepharospasm.org

GREATER WASHINGTON, DC AREA Zoom! Online Support Group Meeting January 24 @ 10:30 am Date:  Wednesday, January 24 Time:  10:30 am  Location:  Zoom Please contact Jennifer Kawar for invitation instructions to meeting. Contact Person: Jennifer Kawar Tel: 301-229-4038 E-mail: jennifer_kawar@yahoo.com

Date:  Saturday, February 17, 2024 Time:  1 pm Pacific  Location:  Zoom Please contact Sherwin Low for invitation instructions to the meeting. Contact Person:  Sherwin Low Phone:  510-914-6377 Email:  Sherwincell@gmail.com  

Date:  Saturday, February 18, 2024 Time:  2 pm Location:  Shoreline Library, 345 175th St. Shoreline, WA 98155 Please contact Peter Bakalor for invitation instructions to meeting. Contact Person: Peter Bakalor Tel: 206-219-9053 Email:  pbakalor@outlook.com

Date:  Friday, February 23, 2024 Time:  1pm-3pm central Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact:  Charlene Hudgins Phone:  409-832-0788 Email:  charlene@blepharospasm.org

Date:  Wednesday, February 28, 2024 Time: 10:30 am, eastern Location:  Zoom Please contact Jennifer Kawar for invitation instructions to the meeting. Contact Person:  Jennifer Kawar Phone:  301-229-4038 Email:  jennifer_kawar@yahoo.com

Date:  Thursday, March 14, 2024 Time: 1pm-3pm central Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact Person:  Charlene Hudgins Phone: 409-832-0788 Email:  charlene@blepharospasm.org

Date: Wednesday, March 27, 2024 Time:  10:30 am - 12:30 pm eastern Location:  Zoom Please contact Jennifer for invitation instructions to meeting. Contact Person:  Jennifer Kawar Tel: 301-229-4038 E-mail: jennifer_kawar@yahoo.com    

Date:  Friday, April 12, 2024 Time:  11:00 am central Location:  Zoom Please contact Carlas Powell for invitation instructions to the meeting. Contact Person:  Carlas Powell Phone:  409-363-2206 Email:  carlas.powell@gmail.com

Date:  Tuesday, April 16, 2024 Time:  1pm-3pm central Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact Person:  Charlene Hudgins Phone:  409-832-0788 Email:  charlene@blepharospasm.org

Date:  Monday, May 20, 2024 Time:  1pm-3pm central Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact Person:  Charlene Hudgins Phone:  409-832-0788 Email:  charlene@blepharospasm.org  

NATIONAL Zoom! Support Group Meeting Date:  Wednesday, June 12, 2024 Time:  1pm-3pm central time Location:  Zoom Please contact Charlene for invitation instructions to the meeting. Contact Person:  Charlene Hudgins Phone:  409-832-0788 Email:  charlene@blepharospasm.org

Date:  Tuesday, June 18, 2024 Time:  Noon, Central Time Location:  Zoom Please contact Ena Wilmot for invitation instructions to the meeting. Contact Person:  Ena Wilmot Phone:  817-488-0445 Email: enamwa@hotmail.com

UK Zoom! Support Group Meeting Date: Thursday, June 20, 2024 Time:  1pm-3pm United States central time Location:  Zoom Please contact Charlene for invitation instructions to meeting. Contact Person:  Charlene Hudgins Phone:  409-832-0788