WE NEED YOUR HELP! Earlier this year several BEBRF patients participated in focus groups for a Patient-Centered Outcome (PCO) research project developing a phone app that will track the efficacy of botulinum toxin injections from injection cycle to injection cycle. The project has been created by Drs. Sarah Pirio Richardson (University of New Mexico) and […]
Please contact Sharon for invitation instructions to the meeting. Contact: Sharon West Tel: 817-297-4389 Email: swest124@swbell.net
The drug company ADDEX together with Dr. Buz Jinnah of Emory University (who serves on our MAB and the Medical and Scientific Advisory Council for DMRF) is launching a trial of a new class of medications known as allosteric modulators. The name of the drug they will use is dipraglurant. It is being studied for […]
Please contact Linda for invitation instructions to the meeting. Contact: Linda Trahan Tel: 214-563-7937 Email: linda.trahan@sbcglobal.net
The PowerPoint decks from the presentations are now available online at PowerPoints of presentations
Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 email: charlene@blepharospasm.org
Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 email: charlene@blepharospasm.org
Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 email: charlene@blepharospasm.org
Thursday, January 27, 2022, at 1 pm central time. Speaker is Dr. Julie Woodward. Register on Zoom at https://us02web.zoom.us/webinar/register/WN_oFc5kT1GRZeM5ZWV-U8D0A
THE MEETING DATE HAS CHANGED - NO LONGER ON THE 18TH. Please contact Ena for invitation instructions to the meeting. Contact: Ena Wilmot Tel: 817-488-0445 Email: enamwa@hotmail.com
Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org
Please contact Peter for invitation instructions to the meeting. Contact: Peter Bakalor Tel: 206-219-9053 Email: pbakalor@outlook.com
The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org
Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org
The meeting is in held in Eastern Time Zone. Please contact Helene for invitation instructions to the meeting. Contact: Helene Lauffer Tel: 212-496-0294 Email: hlauffer@earthlink.net
The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org
In-Person Meeting Euro Cafe 546 E. Baseline Rd Claremont, CA 91711 Contact Person: Cynthia Clark Tel: 650-678-4132 Email: clark.cyl@gmail.com
Please contact Cynthia for invitation instructions to the meeting. Contact: Cynthia Clark Tel: 650-678-4132 Email: clark.cyl@gmail.com
The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org
Please contact Sharon for invitation instructions to the meeting. Contact: Sharon West Tel: 817-297-4389 Email: swest124@swbell.net
Please contact Cynthia for invitation instructions to the meeting. Contact: Cynthia Clark Tel: 650-678-4132 Email: clark.cyl@gmail.com