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Find a Doctor
  • About
    • What is Blepharospasm?
    • Newly Diagnosed?
    • Signs & Symptoms
    • Genetics
  • Education
    • Medical Publications
    • Related Articles
    • Videos
    • Medical Glossary
    • FAQs
  • Treatments
    • Botulinum Toxin
    • Oral Medications
    • Surgery
    • Deep Brain Stimulation
    • Non - Surgical Aids
  • Related Disorders
    • Blepharitis
    • Dry Eye
    • Meige Syndrome – Oromandibular Dystonia
    • Hemifacial Spasm
    • Apraxia
    • Photophobia
    • Sjogren’s
    • Trichiasis
    • Eyelid Twitch
  • Injection Advice
    • Injections Tips
    • Injection Journal
    • Common Injection Patterns
    • More Frequent Injections
  • Support Groups
    • Submit Your Meeting
  • Coping Skills
  • Patient Stories
  • Ask the Doctor
  • Pharma Co Help
  • Newsletter
  • Other Resources
  • Bulletin Board
  • Testimonials
  • Apply for a Grant
  • Funded Research
  • Partnered Research
  • Dystonia Coalition Research
  • Volunteer
    • Start a Support Group
    • Get involved in a Clinical Trial
    • Donate your Brain for Research
    • Increase Awareness
    • Offer Your Expertise
  • Participate
    • Tell your Story
    • Advocate with us
    • Fundraise
  • Shop
    • Our Store
    • BEBRF Merchandise
    • Charitable Shopping
  • Ways to Help
    • Planned Giving
    • Employer Matching Donations
  • Mission
  • History
  • Our Impact
  • Our Team
  • Medical Advisory Board
  • Photos
  • Events Calendar
  • Symposium
  • Webinars
  • From the Executive Director
28 events found.

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  • June 2021

  • Tue 22
    Man holding speach at support meeting, two participants next to him
    June 22, 2021 @ 12:00 pm - 2:00 pm

    Dallas, TX Support Meeting

    Zoom

    Please contact Ena for invitation instructions to the meeting. Contact: Ena Wilmot Tel: 817-488-0445 Email: enamwa@hotmail.com

  • Wed 30
    June 30, 2021 @ 1:30 pm - 3:30 pm

    Dallas/Fort Worth, TX Support Meeting

    Zoom

    Please contact Sharon for invitation instructions to the meeting. Contact: Sharon West Tel: 817-297-4389 Email: swest124@swbell.net

  • August 2021

  • Mon 9
    August 9, 2021 @ 11:00 am - 1:00 pm

    Northeast Texas

    Zoom

    Please contact Linda for invitation instructions to the meeting. Contact: Linda Trahan Tel: 214-563-7937 Email: linda.trahan@sbcglobal.net

  • Mon 23
    August 23, 2021 @ 1:00 pm - 3:00 pm

    UK Support Meeting

    Zoom

    Please contact Charlene for invitation instructions to the meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org

  • September 2021

  • Fri 10
    September 10, 2021 @ 1:00 pm - 3:00 pm

    National Support Meeting

    Zoom

    Please contact Charlene for invitation instructions to the meeting. Contact Person: Charlene Hudgins Phone: 409-832-0788 Email: charlene@blepharospasm.org

  • Wed 15
    September 15, 2021 @ 1:00 pm - 3:00 pm

    San Diego, CA

    Zoom

    Please contact Joanne for invitation instructions to the meeting. Contact Person: Joanne Matuzas Phone: 858-395-4609 Email: jmatuzas@aol.com

  • Thu 16
    September 16, 2021 @ 1:30 pm - 3:30 pm

    Los Angeles, CA

    Zoom

    Please contact Cynthia for invitation instructions to the meeting. There are two different time options for a meeting this day.  Contact Person: Cynthia Clark Phone: 650-678-4132 Email: clark.cyl@gmail.com

  • Sat 25
    September 25, 2021 @ 12:30 pm - 2:30 pm

    Ridgeway, VA

    Clarence's Steak & Seafood House 6636 Greensboro Rd, Ridgeway, VA, United States

    Location: Clarence's Steak & Seafood House 6636 Greensboro Rd Ridgeway, VA 24148 Contact Person: Peggy Gilley Phone: 276-956-3555

  • October 2021

  • Tue 12
    October 12, 2021 @ 8:00 am - 5:00 pm

    Presentations from the 2021 Symposium

    The PowerPoint decks from presentations made at the 2021 BEBRF Symposium in Philadelphia are now available online: Symposium PowerPoints

  • Tue 19
    October 19, 2021 @ 12:00 pm - 2:00 pm

    Dallas, TX

    Zoom

    Please contact Ena for invitation instructions to the meeting. Speaker: Dr. Elizabeth Peckham Contact Person: Ena Wilmot Phone: 817-488-0445 Email: enamwa@hotmail.com

  • Wed 27
    October 27, 2021 - November 16, 2021

    You Can Participate in Research!

    WE NEED YOUR HELP! Earlier this year several BEBRF patients participated in focus groups for a Patient-Centered Outcome (PCO) research project developing a phone app that will track the efficacy of botulinum toxin injections from injection cycle to injection cycle. The project has been created by Drs. Sarah Pirio Richardson (University of New Mexico) and […]

  • Wed 27
    October 27, 2021 @ 1:30 pm - 3:30 pm

    Cancelled

    Zoom

    Please contact Sharon for invitation instructions to the meeting. Contact: Sharon West Tel: 817-297-4389 Email: swest124@swbell.net

  • November 2021

  • Mon 1
    November 1, 2021 - January 31, 2022

    Participate in a Clinical Trial!

    The drug company ADDEX together with Dr. Buz Jinnah of Emory University (who serves on our MAB and the Medical and Scientific Advisory Council for DMRF) is launching a trial of a new class of medications known as allosteric modulators. The name of the drug they will use is dipraglurant. It is being studied for […]

  • Mon 15
    November 15, 2021 @ 11:00 am - 1:00 pm

    Northeast Texas November

    Zoom

    Please contact Linda for invitation instructions to the meeting. Contact: Linda Trahan Tel: 214-563-7937 Email: linda.trahan@sbcglobal.net

  • Tue 16
    November 16, 2021 - January 1, 2022

    Presentations from the 2021 Symposium

    The PowerPoint decks from the presentations are now available online at PowerPoints of presentations

  • Mon 29
    November 29, 2021 @ 1:00 pm - 3:00 pm

    National Zoom Support Group Meeting

    Zoom

    Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 email: charlene@blepharospasm.org

  • December 2021

  • Thu 16
    December 16, 2021 @ 1:00 pm - 3:00 pm

    National Zoom Support Group Meeting

    Zoom

    Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 email: charlene@blepharospasm.org

  • January 2022

  • Fri 21
    January 21, 2022 @ 1:00 pm - 3:00 pm

    National Zoom Support Group Meeting

    Zoom

    Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 email: charlene@blepharospasm.org

  • Thu 27
    January 27, 2022 @ 1:00 pm - 3:00 pm

    Webinar – Surgical Procedures for Blepharospasm

    Zoom

    Thursday, January 27, 2022, at 1 pm central time.  Speaker is Dr. Julie Woodward.  Register on Zoom at https://us02web.zoom.us/webinar/register/WN_oFc5kT1GRZeM5ZWV-U8D0A

  • February 2022

  • Tue 15
    February 15, 2022 @ 12:00 pm - 2:00 pm

    DFW Support Group Meeting

    Zoom

    THE MEETING DATE HAS CHANGED - NO LONGER ON THE 18TH. Please contact Ena for invitation instructions to the meeting. Contact: Ena Wilmot Tel: 817-488-0445 Email: enamwa@hotmail.com 

  • Wed 23
    February 23, 2022 @ 1:00 pm - 3:00 pm

    National Zoom Support Group Meeting

    Zoom

    Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

  • Thu 24
    February 24, 2022 @ 1:30 pm - 3:30 pm

    Pacific Northwest Support Group Meeting

    Zoom

    Please contact Peter for invitation instructions to the meeting. Contact: Peter Bakalor Tel: 206-219-9053 Email: pbakalor@outlook.com

  • March 2022

  • Fri 4
    March 4, 2022 @ 1:00 pm - 3:00 pm

    UK Zoom Support Group Meeting

    Zoom

    The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

  • Thu 17
    March 17, 2022 @ 1:00 pm - 3:00 pm

    National Zoom Support Group Meeting

    Zoom

    Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

  • Sun 20
    March 20, 2022 @ 11:00 am - 1:00 pm

    NYC Support Group Meeting

    Zoom

    The meeting is in held in Eastern Time Zone. Please contact Helene for invitation instructions to the meeting. Contact: Helene Lauffer Tel: 212-496-0294 Email: hlauffer@earthlink.net

  • Wed 23
    March 23, 2022 @ 1:00 pm - 3:00 pm

    Cranial Dystonia Support Group Meeting

    Zoom

    The meeting is in held in Central Time Zone. Please contact Charlene for invitation instructions to the meeting. Contact: Charlene Hudgins Tel: 409-832-0788 Email: charlene@blepharospasm.org

  • Sat 26
    March 26, 2022 @ 9:30 am - 11:30 am

    Greater LA Support Group Meeting

    Euro Cafe 546 E. Baseline Rd, Claremont, CA, United States

    In-Person Meeting Euro Cafe 546 E. Baseline Rd Claremont, CA 91711 Contact Person: Cynthia Clark Tel: 650-678-4132 Email: clark.cyl@gmail.com  

  • Thu 31
    March 31, 2022 @ 3:30 pm - 5:30 pm

    Western District Support Group Meeting

    Zoom

    Please contact Cynthia for invitation instructions to the meeting. Contact: Cynthia Clark Tel: 650-678-4132 Email: clark.cyl@gmail.com

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Benign Essential Blepharospasm Research Foundation

409-832-0788 409-832-0890 bebrf@blepharospasm.org
PO Box 12468
Beaumont, TX 77726
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