WE NEED YOUR HELP! Earlier this year several BEBRF patients participated in focus groups for a Patient-Centered Outcome (PCO) research project developing a phone app that will track the efficacy […]

The drug company ADDEX together with Dr. Buz Jinnah of Emory University (who serves on our MAB and the Medical and Scientific Advisory Council for DMRF) is launching a trial […]

Please contact Linda for invitation instructions to the meeting. Contact: Linda Trahan Tel: 214-563-7937 Email: linda.trahan@sbcglobal.net