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DTSTART;TZID=UTC:20230209T130000
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CREATED:20221026T202623Z
LAST-MODIFIED:20221026T202623Z
UID:4350-1675947600-1675954800@blepharospasm.org
SUMMARY:National Support Group Meeting for Cranial Dystonia and Meige
DESCRIPTION:The meeting is in held in Central Time Zone. \nPlease contact Charlene for invitation instructions to the meeting. \nContact: Charlene Hudgins \nTel: 409-832-0788 \nEmail: charlene@blepharospasm.org
URL:https://blepharospasm.org/event/national-support-group-meeting-for-cranial-dystonia-and-meige/
LOCATION:Zoom
ORGANIZER;CN="Charlene Hudgins":MAILTO:charlene@blepharospasm.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Atlantic/Azores:20230216T140000
DTEND;TZID=Atlantic/Azores:20230216T160000
DTSTAMP:20230127T153609Z
CREATED:20230127T152859Z
LAST-MODIFIED:20230127T153609Z
UID:4454-1676556000-1676563200@blepharospasm.org
SUMMARY:Eastern District Support Group Meeting
DESCRIPTION:This meeting is held in Eastern Time Zone. \nFor residents of the following states: \nCT\, DE\, DC\, FL\, GA\, MA\, MD\, ME\, NH\, \nNJ\, NY\, NC\, PA\, PR\, RI\, SC\, VT\, VA\, WV. \nPlease contact Bryan for invitation instructions to meeting. \nContact Person: Bryan Renehan \nPhone: 301-461-0679 \nEmail: bryan.renehan@gmail.com
URL:https://blepharospasm.org/event/eastern-district-support-group-meeting/
LOCATION:Zoom
ORGANIZER;CN="Bryan Renehan":MAILTO:bryan.renehan@gmail.com
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BEGIN:VEVENT
DTSTART;TZID=UTC:20230221T130000
DTEND;TZID=UTC:20230221T150000
DTSTAMP:20221026T202915Z
CREATED:20221026T202915Z
LAST-MODIFIED:20221026T202915Z
UID:4352-1676984400-1676991600@blepharospasm.org
SUMMARY:National Support Group Meeting
DESCRIPTION:The meeting is in held in Central Time Zone. \nPlease contact Charlene for invitation instructions to the meeting. \nContact: Charlene Hudgins \nTel: 409-832-0788 \nEmail: charlene@blepharospasm.org
URL:https://blepharospasm.org/event/national-support-group-meeting-3/
LOCATION:Zoom
ORGANIZER;CN="Charlene Hudgins":MAILTO:charlene@blepharospasm.org
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BEGIN:VEVENT
DTSTART;TZID=UTC:20230224T130000
DTEND;TZID=UTC:20230224T140000
DTSTAMP:20230120T185937Z
CREATED:20221216T163836Z
LAST-MODIFIED:20230120T185937Z
UID:4411-1677243600-1677247200@blepharospasm.org
SUMMARY:Managing Dry Eye Webinar
DESCRIPTION:Join us on Friday\, February 24th @ 1 pm central time\, when we will be joined by presenter Rebecca Petris\, Executive Director of the Dry Eye Foundation\, to discuss practical applications for managing symptoms of dry eye.  If you are interested in viewing the webinar\, please follow the 2 step process: \n1) First\, register for the webinar by clicking the following link:   https://us02web.zoom.us/webinar/register/WN_pHKK0quQS_S7LKUW3K_D6A  \n2) After registering\, you will be sent an email from Zoom with the link to view the webinar in February.   \nWe hope to see you there! \n  \n 
URL:https://blepharospasm.org/event/managing-dry-eye-webinar/
LOCATION:Zoom
ORGANIZER;CN="Charlene Hudgins":MAILTO:charlene@blepharospasm.org
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BEGIN:VEVENT
DTSTART;TZID=UTC:20230227T090000
DTEND;TZID=UTC:20230227T164500
DTSTAMP:20230126T201925Z
CREATED:20230126T195647Z
LAST-MODIFIED:20230126T201925Z
UID:4439-1677488400-1677516300@blepharospasm.org
SUMMARY:FDA Rare Disease Day Virtual Event- "Intersections with Rare Diseases- A Patient-Focused Event"
DESCRIPTION:On February 27th\, the Food and Drug Administration (FDA) of the US government will be holding a Virtual Event entitled “Intersections with Rare Diseases – A Patient-focused Event\,” which will explore a range of topics related to rare diseases. \n            Participants will have the opportunity to: \n\nHear directly from the FDA on initiatives to advance medical product development for rare diseases.\nEngage with the FDA to provide your perspective as a patient\, caregiver\, or family member.\nUnderstand considerations and challenges associated with clinical trials in small populations.\n\nHear from medical students on rare disease education for medical professionals \n\nTo register for the FDA Rare Disease Day Virtual Meeting\, use this link: Register 
URL:https://blepharospasm.org/event/fda-rare-disease-day-virtual-event-intersections-with-rare-diseases-a-patient-focused-event/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20230228T090000
DTEND;TZID=UTC:20230228T170000
DTSTAMP:20230126T200352Z
CREATED:20230126T200352Z
LAST-MODIFIED:20230126T200352Z
UID:4446-1677574800-1677603600@blepharospasm.org
SUMMARY:NIH Rare Disease Day Event
DESCRIPTION:On February 28th\, the National Institutes of Health (NIH)’s National Center for Advancing Translational Sciences (NCATS) will co-sponsor this year’s Rare Disease Day event at the NIH Clinical Center. \nThis event aims to raise awareness about rare diseases\, the people they affect\, and NIH research collaborations that address scientific challenges and advance research for new treatments. This is a free event that is open to the public\, including patients\, patient advocates\, health care providers\, researchers\, trainees\, students\, industry representatives\, and government staff. This year’s event will be both virtual and in person at the Natcher Conference Center in Bethesda\, MD. A livestream will be available via NIH VideoCast with the event archived for replay afterward. \n  \nTo register for the NIH Rare Disease Day Event\, use this link:  Register \n 
URL:https://blepharospasm.org/event/nih-rare-disease-day-event/
LOCATION:Online
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