BEGIN:VCALENDAR
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PRODID:-//BEBRF - ECPv6.18.3//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:BEBRF
X-ORIGINAL-URL:https://blepharospasm.org
X-WR-CALDESC:Events for BEBRF
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20200101T000000
END:STANDARD
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BEGIN:VEVENT
DTSTART;TZID=UTC:20211012T080000
DTEND;TZID=UTC:20211012T170000
DTSTAMP:20211012T181859Z
CREATED:20211012T175127Z
LAST-MODIFIED:20211012T181859Z
UID:2551-1634025600-1634058000@blepharospasm.org
SUMMARY:Presentations from the 2021 Symposium
DESCRIPTION:The PowerPoint decks from presentations made at the 2021 BEBRF Symposium in Philadelphia are now available online: \nSymposium PowerPoints
URL:https://blepharospasm.org/event/presentations-from-the-2021-symposium/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211019T120000
DTEND;TZID=UTC:20211019T140000
DTSTAMP:20211018T191337Z
CREATED:20210513T144833Z
LAST-MODIFIED:20211018T191337Z
UID:796-1634644800-1634652000@blepharospasm.org
SUMMARY:Dallas\, TX
DESCRIPTION:Please contact Ena for invitation instructions to the meeting. \nSpeaker: Dr. Elizabeth Peckham \nContact Person: Ena Wilmot \nPhone: 817-488-0445 \nEmail: enamwa@hotmail.com
URL:https://blepharospasm.org/event/dallas-tx/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211027
DTEND;VALUE=DATE:20211117
DTSTAMP:20211027T160444Z
CREATED:20211027T155118Z
LAST-MODIFIED:20211027T160444Z
UID:2786-1635292800-1637107199@blepharospasm.org
SUMMARY:You Can Participate in Research!
DESCRIPTION:WE NEED YOUR HELP! Earlier this year several BEBRF patients participated in focus groups for a Patient-Centered Outcome (PCO) research project developing a phone app that will track the efficacy of botulinum toxin injections from injection cycle to injection cycle. The project has been created by Drs. Sarah Pirio Richardson (University of New Mexico) and Brian Berman (Virginia Commonwealth University)\, both on the BEBRF Medical Advisory Board. This project is funded by the Dystonia Coalition. They are ready to move on to the next phase of the project\, and you can help. \nThey are currently collecting data from patients with blepharospasm and now want to hear from YOU! \nThe Goal: To gather data that will be essential for developing future novel treatments for dystonia. \nHow they are doing it: By learning more about the symptoms and activities that can be troublesome for people with blepharospasm\, understanding which aspects of this condition are most relevant to you\, and identifying which aspects of this condition you would most want to see a treatment for. \nHow you can help: By filling out this survey! As they develop tools to gather this information\, feedback from patients like you is essential. \nClick here for survey
URL:https://blepharospasm.org/event/you-can-participate-in-research/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211027T133000
DTEND;TZID=UTC:20211027T153000
DTSTAMP:20211018T191445Z
CREATED:20210513T144936Z
LAST-MODIFIED:20211018T191445Z
UID:798-1635341400-1635348600@blepharospasm.org
SUMMARY:Cancelled
DESCRIPTION:Please contact Sharon for invitation instructions to the meeting. \nContact: Sharon West \nTel: 817-297-4389 \nEmail: swest124@swbell.net
URL:https://blepharospasm.org/event/dallas-fort-worth-tx/
LOCATION:Zoom
END:VEVENT
END:VCALENDAR