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X-ORIGINAL-URL:https://blepharospasm.org
X-WR-CALDESC:Events for BEBRF
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BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
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TZOFFSETTO:-0800
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BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
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DTSTART:20230312T100000
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BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
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BEGIN:VEVENT
DTSTART;TZID=UTC:20220521T100000
DTEND;TZID=UTC:20220521T120000
DTSTAMP:20260411T215426
CREATED:20220316T182001Z
LAST-MODIFIED:20220428T135759Z
UID:3234-1653127200-1653134400@blepharospasm.org
SUMMARY:Greater LA Support Group Meeting
DESCRIPTION:In-Person Meeting \nEuro Cafe \n546 E. Baseline Rd \nClaremont\, CA 91711 \nContact Person: Cynthia Clark \nTel: 650-678-4132 \nEmail: clark.cyl@gmail.com \n 
URL:https://blepharospasm.org/event/greater-la-support-group-meeting-2/
LOCATION:Euro Cafe\, 546 E. Baseline Rd\, Claremont\, CA\, 91711\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220520T130000
DTEND;TZID=America/Chicago:20220520T150000
DTSTAMP:20260411T215426
CREATED:20220510T184229Z
LAST-MODIFIED:20220510T184229Z
UID:3500-1653051600-1653058800@blepharospasm.org
SUMMARY:National Zoom Support Group Meeting
DESCRIPTION:The meeting is in held in Central Time Zone. \nPlease contact Charlene for invitation instructions to the meeting. \nContact: Charlene Hudgins \nTel: 409-832-0788 \nEmail: charlene@blepharospasm.org
URL:https://blepharospasm.org/event/national-zoom-support-group-meeting-7/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220428T183000
DTEND;TZID=UTC:20220428T203000
DTSTAMP:20260411T215426
CREATED:20220316T182503Z
LAST-MODIFIED:20220316T182503Z
UID:3241-1651170600-1651177800@blepharospasm.org
SUMMARY:Greater LA Support Group Meeting
DESCRIPTION:Please contact Cynthia for invitation instructions to the meeting. \nContact: Cynthia Clark \nTel: 650-678-4132 \nEmail: clark.cyl@gmail.com
URL:https://blepharospasm.org/event/greater-la-support-group-meeting-5/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220427T130000
DTEND;TZID=America/Chicago:20220427T150000
DTSTAMP:20260411T215426
CREATED:20220103T152936Z
LAST-MODIFIED:20220322T185043Z
UID:2837-1651064400-1651071600@blepharospasm.org
SUMMARY:West DFW Texas Support Meeting
DESCRIPTION:Please contact Sharon for invitation instructions to the meeting. \nContact: Sharon West \nTel: 817-297-4389 \nEmail: swest124@swbell.net
URL:https://blepharospasm.org/event/west-dfw-texas-support-meeting/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220414T130000
DTEND;TZID=America/Chicago:20220414T150000
DTSTAMP:20260411T215426
CREATED:20220118T154941Z
LAST-MODIFIED:20220322T185319Z
UID:3070-1649941200-1649948400@blepharospasm.org
SUMMARY:National Zoom Support Group Meeting
DESCRIPTION:The meeting is in held in Central Time Zone. \nPlease contact Charlene for invitation instructions to the meeting. \nContact: Charlene Hudgins \nTel: 409-832-0788 \nEmail: charlene@blepharospasm.org
URL:https://blepharospasm.org/event/national-zoom-support-group-meeting-6/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20220331T153000
DTEND;TZID=America/Denver:20220331T173000
DTSTAMP:20260411T215426
CREATED:20220316T182858Z
LAST-MODIFIED:20220322T185249Z
UID:3247-1648740600-1648747800@blepharospasm.org
SUMMARY:Western District Support Group Meeting
DESCRIPTION:Please contact Cynthia for invitation instructions to the meeting. \nContact: Cynthia Clark \nTel: 650-678-4132 \nEmail: clark.cyl@gmail.com
URL:https://blepharospasm.org/event/western-district-support-group-meeting/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220326T093000
DTEND;TZID=America/Los_Angeles:20220326T113000
DTSTAMP:20260411T215426
CREATED:20220316T181832Z
LAST-MODIFIED:20220322T185212Z
UID:3231-1648287000-1648294200@blepharospasm.org
SUMMARY:Greater LA Support Group Meeting
DESCRIPTION:In-Person Meeting \nEuro Cafe \n546 E. Baseline Rd \nClaremont\, CA 91711 \nContact Person: Cynthia Clark \nTel: 650-678-4132 \nEmail: clark.cyl@gmail.com \n 
URL:https://blepharospasm.org/event/greater-la-support-group-meeting/
LOCATION:Euro Cafe\, 546 E. Baseline Rd\, Claremont\, CA\, 91711\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220323T130000
DTEND;TZID=America/Chicago:20220323T150000
DTSTAMP:20260411T215426
CREATED:20220118T154856Z
LAST-MODIFIED:20220322T185126Z
UID:3068-1648040400-1648047600@blepharospasm.org
SUMMARY:Cranial Dystonia Support Group Meeting
DESCRIPTION:The meeting is in held in Central Time Zone. \nPlease contact Charlene for invitation instructions to the meeting. \nContact: Charlene Hudgins \nTel: 409-832-0788 \nEmail: charlene@blepharospasm.org
URL:https://blepharospasm.org/event/cranial-dystonia-support-group-meeting/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220320T110000
DTEND;TZID=UTC:20220320T130000
DTSTAMP:20260411T215426
CREATED:20220311T165216Z
LAST-MODIFIED:20220311T165403Z
UID:3212-1647774000-1647781200@blepharospasm.org
SUMMARY:NYC Support Group Meeting
DESCRIPTION:The meeting is in held in Eastern Time Zone. \nPlease contact Helene for invitation instructions to the meeting. \nContact: Helene Lauffer \nTel: 212-496-0294 \nEmail: hlauffer@earthlink.net
URL:https://blepharospasm.org/event/nyc-support-group-meeting/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220317T130000
DTEND;TZID=UTC:20220317T150000
DTSTAMP:20260411T215426
CREATED:20220114T171925Z
LAST-MODIFIED:20220114T171925Z
UID:3052-1647522000-1647529200@blepharospasm.org
SUMMARY:National Zoom Support Group Meeting
DESCRIPTION:Please contact Charlene for invitation instructions to the meeting. \nContact: Charlene Hudgins \nTel: 409-832-0788 \nEmail: charlene@blepharospasm.org
URL:https://blepharospasm.org/event/national-zoom-support-group-meeting-5/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220304T130000
DTEND;TZID=UTC:20220304T150000
DTSTAMP:20260411T215426
CREATED:20220118T154807Z
LAST-MODIFIED:20220118T154807Z
UID:3066-1646398800-1646406000@blepharospasm.org
SUMMARY:UK Zoom Support Group Meeting
DESCRIPTION:The meeting is in held in Central Time Zone. \nPlease contact Charlene for invitation instructions to the meeting. \nContact: Charlene Hudgins \nTel: 409-832-0788 \nEmail: charlene@blepharospasm.org
URL:https://blepharospasm.org/event/uk-zoom-support-group-meeting/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220224T133000
DTEND;TZID=UTC:20220224T153000
DTSTAMP:20260411T215426
CREATED:20220114T170031Z
LAST-MODIFIED:20220114T170031Z
UID:3049-1645709400-1645716600@blepharospasm.org
SUMMARY:Pacific Northwest Support Group Meeting
DESCRIPTION:Please contact Peter for invitation instructions to the meeting. \nContact: Peter Bakalor \nTel: 206-219-9053 \nEmail: pbakalor@outlook.com
URL:https://blepharospasm.org/event/pacific-northwest-support-group-meeting/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220223T130000
DTEND;TZID=UTC:20220223T150000
DTSTAMP:20260411T215426
CREATED:20220114T165757Z
LAST-MODIFIED:20220114T165757Z
UID:3047-1645621200-1645628400@blepharospasm.org
SUMMARY:National Zoom Support Group Meeting
DESCRIPTION:Please contact Charlene for invitation instructions to the meeting. \nContact: Charlene Hudgins \nTel: 409-832-0788 \nEmail: charlene@blepharospasm.org
URL:https://blepharospasm.org/event/national-zoom-support-group-meeting-4/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220215T120000
DTEND;TZID=UTC:20220215T140000
DTSTAMP:20260411T215426
CREATED:20220114T144625Z
LAST-MODIFIED:20220204T152715Z
UID:3037-1644926400-1644933600@blepharospasm.org
SUMMARY:DFW Support Group Meeting
DESCRIPTION:THE MEETING DATE HAS CHANGED – NO LONGER ON THE 18TH. \nPlease contact Ena for invitation instructions to the meeting. \nContact: Ena Wilmot \nTel: 817-488-0445 \nEmail: enamwa@hotmail.com 
URL:https://blepharospasm.org/event/dfw-support-group-meeting/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220127T130000
DTEND;TZID=UTC:20220127T150000
DTSTAMP:20260411T215426
CREATED:20220103T151448Z
LAST-MODIFIED:20220103T151448Z
UID:2835-1643288400-1643295600@blepharospasm.org
SUMMARY:Webinar - Surgical Procedures for Blepharospasm
DESCRIPTION:Thursday\, January 27\, 2022\, at 1 pm central time.  \nSpeaker is Dr. Julie Woodward.  \nRegister on Zoom at https://us02web.zoom.us/webinar/register/WN_oFc5kT1GRZeM5ZWV-U8D0A
URL:https://blepharospasm.org/event/webinar-surgical-procedures-for-blepharospasm/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220121T130000
DTEND;TZID=UTC:20220121T150000
DTSTAMP:20260411T215426
CREATED:20211103T214734Z
LAST-MODIFIED:20211103T214734Z
UID:2816-1642770000-1642777200@blepharospasm.org
SUMMARY:National Zoom Support Group Meeting
DESCRIPTION:Please contact Charlene for invitation instructions to the meeting. \nContact: Charlene Hudgins \nTel: 409-832-0788 \nemail: charlene@blepharospasm.org
URL:https://blepharospasm.org/event/national-zoom-support-group-meeting-3/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211216T130000
DTEND;TZID=UTC:20211216T150000
DTSTAMP:20260411T215426
CREATED:20211103T214425Z
LAST-MODIFIED:20211103T214425Z
UID:2813-1639659600-1639666800@blepharospasm.org
SUMMARY:National Zoom Support Group Meeting
DESCRIPTION:Please contact Charlene for invitation instructions to the meeting. \nContact: Charlene Hudgins \nTel: 409-832-0788 \nemail: charlene@blepharospasm.org
URL:https://blepharospasm.org/event/national-zoom-support-group-meeting-2/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211129T130000
DTEND;TZID=UTC:20211129T150000
DTSTAMP:20260411T215426
CREATED:20211103T214056Z
LAST-MODIFIED:20211103T214544Z
UID:2811-1638190800-1638198000@blepharospasm.org
SUMMARY:National Zoom Support Group Meeting
DESCRIPTION:Please contact Charlene for invitation instructions to the meeting. \nContact: Charlene Hudgins \nTel: 409-832-0788 \nemail: charlene@blepharospasm.org
URL:https://blepharospasm.org/event/national-zoom-support-group-meeting/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211116
DTEND;VALUE=DATE:20220102
DTSTAMP:20260411T215426
CREATED:20211012T184541Z
LAST-MODIFIED:20220104T213701Z
UID:2559-1637020800-1641081599@blepharospasm.org
SUMMARY:Presentations from the 2021 Symposium
DESCRIPTION:The PowerPoint decks from the presentations are now available online at \nPowerPoints of presentations
URL:https://blepharospasm.org/event/presentations-from-the-2021-symposium-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211115T110000
DTEND;TZID=UTC:20211115T130000
DTSTAMP:20260411T215426
CREATED:20210513T145058Z
LAST-MODIFIED:20210513T145108Z
UID:806-1636974000-1636981200@blepharospasm.org
SUMMARY:Northeast Texas November
DESCRIPTION:Please contact Linda for invitation instructions to the meeting. \nContact: Linda Trahan \nTel: 214-563-7937 \nEmail: linda.trahan@sbcglobal.net
URL:https://blepharospasm.org/event/northeast-texas-november/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211101
DTEND;VALUE=DATE:20220201
DTSTAMP:20260411T215426
CREATED:20211101T135522Z
LAST-MODIFIED:20211101T135634Z
UID:2798-1635724800-1643673599@blepharospasm.org
SUMMARY:Participate in a Clinical Trial!
DESCRIPTION:The drug company ADDEX together with Dr. Buz Jinnah of Emory University (who serves on our MAB and the Medical and Scientific Advisory Council for DMRF) is launching a trial of a new class of medications known as allosteric modulators. The name of the drug they will use is dipraglurant. It is being studied for possible use with Parkinson’s disease and dystonias. \nThe study will be a small pilot trial of about 15 patients. The patients will take oral medication and then stay at Emory University for several hours of observation\, followed by a second dose. The next day\, a third dose will be given. So\, participation would require 2 days at Emory University in Atlanta. \nIf you are interested in participating in this research\, please contact Cameron Injoo for further information: cameron.injoo.yeo@emory.edu
URL:https://blepharospasm.org/event/participate-in-research/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211027T133000
DTEND;TZID=UTC:20211027T153000
DTSTAMP:20260411T215426
CREATED:20210513T144936Z
LAST-MODIFIED:20211018T191445Z
UID:798-1635341400-1635348600@blepharospasm.org
SUMMARY:Cancelled
DESCRIPTION:Please contact Sharon for invitation instructions to the meeting. \nContact: Sharon West \nTel: 817-297-4389 \nEmail: swest124@swbell.net
URL:https://blepharospasm.org/event/dallas-fort-worth-tx/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211027
DTEND;VALUE=DATE:20211117
DTSTAMP:20260411T215426
CREATED:20211027T155118Z
LAST-MODIFIED:20211027T160444Z
UID:2786-1635292800-1637107199@blepharospasm.org
SUMMARY:You Can Participate in Research!
DESCRIPTION:WE NEED YOUR HELP! Earlier this year several BEBRF patients participated in focus groups for a Patient-Centered Outcome (PCO) research project developing a phone app that will track the efficacy of botulinum toxin injections from injection cycle to injection cycle. The project has been created by Drs. Sarah Pirio Richardson (University of New Mexico) and Brian Berman (Virginia Commonwealth University)\, both on the BEBRF Medical Advisory Board. This project is funded by the Dystonia Coalition. They are ready to move on to the next phase of the project\, and you can help. \nThey are currently collecting data from patients with blepharospasm and now want to hear from YOU! \nThe Goal: To gather data that will be essential for developing future novel treatments for dystonia. \nHow they are doing it: By learning more about the symptoms and activities that can be troublesome for people with blepharospasm\, understanding which aspects of this condition are most relevant to you\, and identifying which aspects of this condition you would most want to see a treatment for. \nHow you can help: By filling out this survey! As they develop tools to gather this information\, feedback from patients like you is essential. \nClick here for survey
URL:https://blepharospasm.org/event/you-can-participate-in-research/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211019T120000
DTEND;TZID=UTC:20211019T140000
DTSTAMP:20260411T215426
CREATED:20210513T144833Z
LAST-MODIFIED:20211018T191337Z
UID:796-1634644800-1634652000@blepharospasm.org
SUMMARY:Dallas\, TX
DESCRIPTION:Please contact Ena for invitation instructions to the meeting. \nSpeaker: Dr. Elizabeth Peckham \nContact Person: Ena Wilmot \nPhone: 817-488-0445 \nEmail: enamwa@hotmail.com
URL:https://blepharospasm.org/event/dallas-tx/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211012T080000
DTEND;TZID=UTC:20211012T170000
DTSTAMP:20260411T215426
CREATED:20211012T175127Z
LAST-MODIFIED:20211012T181859Z
UID:2551-1634025600-1634058000@blepharospasm.org
SUMMARY:Presentations from the 2021 Symposium
DESCRIPTION:The PowerPoint decks from presentations made at the 2021 BEBRF Symposium in Philadelphia are now available online: \nSymposium PowerPoints
URL:https://blepharospasm.org/event/presentations-from-the-2021-symposium/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210925T123000
DTEND;TZID=UTC:20210925T143000
DTSTAMP:20260411T215426
CREATED:20210824T204427Z
LAST-MODIFIED:20210824T204941Z
UID:2270-1632573000-1632580200@blepharospasm.org
SUMMARY:Ridgeway\, VA
DESCRIPTION:Location: \nClarence’s Steak & Seafood House \n6636 Greensboro Rd \nRidgeway\, VA 24148 \nContact Person: Peggy Gilley \nPhone: 276-956-3555
URL:https://blepharospasm.org/event/ridgeway-va/
LOCATION:Clarence’s Steak & Seafood House\, 6636 Greensboro Rd\, Ridgeway\, VA\, 24148\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210916T133000
DTEND;TZID=UTC:20210916T153000
DTSTAMP:20260411T215426
CREATED:20210824T210223Z
LAST-MODIFIED:20210903T191609Z
UID:2277-1631799000-1631806200@blepharospasm.org
SUMMARY:Los Angeles\, CA
DESCRIPTION:Please contact Cynthia for invitation instructions to the meeting. \nThere are two different time options for a meeting this day.  \nContact Person: Cynthia Clark \nPhone: 650-678-4132 \nEmail: clark.cyl@gmail.com
URL:https://blepharospasm.org/event/los-angeles-ca/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210915T130000
DTEND;TZID=UTC:20210915T150000
DTSTAMP:20260411T215426
CREATED:20210824T205618Z
LAST-MODIFIED:20210824T210350Z
UID:2275-1631710800-1631718000@blepharospasm.org
SUMMARY:San Diego\, CA
DESCRIPTION:Please contact Joanne for invitation instructions to the meeting. \nContact Person: Joanne Matuzas \nPhone: 858-395-4609 \nEmail: jmatuzas@aol.com
URL:https://blepharospasm.org/event/san-diego-ca/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20210910T130000
DTEND;TZID=America/Chicago:20210910T150000
DTSTAMP:20260411T215426
CREATED:20210824T210820Z
LAST-MODIFIED:20210824T210820Z
UID:2283-1631278800-1631286000@blepharospasm.org
SUMMARY:National Support Meeting
DESCRIPTION:Please contact Charlene for invitation instructions to the meeting. \nContact Person: Charlene Hudgins \nPhone: 409-832-0788 \nEmail: charlene@blepharospasm.org
URL:https://blepharospasm.org/event/national-support-meeting/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210823T130000
DTEND;TZID=UTC:20210823T150000
DTSTAMP:20260411T215426
CREATED:20210824T210556Z
LAST-MODIFIED:20210824T210620Z
UID:2281-1629723600-1629730800@blepharospasm.org
SUMMARY:UK Support Meeting
DESCRIPTION:Please contact Charlene for invitation instructions to the meeting. \nContact Person: Charlene Hudgins \nPhone: 409-832-0788 \nEmail: charlene@blepharospasm.org
URL:https://blepharospasm.org/event/uk-support-meeting/
LOCATION:Zoom
END:VEVENT
END:VCALENDAR