BEBRF

Western District Contacts & SGL Meeting
2022-09-22 16:00 - 17:00 (America/Los_Angeles) | Zoom
Please contact Cynthia for invitation instructions to the meeting.
Contact: Cynthia Clark
Tel: 650-678-4132
Email: clark.cyl@gmail.com

National Zoom Support Group Meeting
2022-10-14 13:00 - 15:00, 2022-11-18 13:00 - 15:00 (America/Chicago) | Zoom
The meeting is in held in Central Time Zone.
Please contact Charlene for invitation instructions to the meeting.
Contact: Charlene Hudgins
Tel: 409-832-0788
Email: charlene@blepharospasm.org

DFW Support Group Meeting
2022-10-18 12:00 - 14:00 (America/Chicago) | Zoom
Please contact Ena for invitation instructions to the meeting.
Contact: Ena Wilmot
Tel: 817-488-0445
Email: enamwa@hotmail.com

Central Texas Support Group Meeting
2022-10-28 11:00 - 12:30 (America/Chicago) | Zoom
Please contact Carlas for invitation instructions to the meeting.
Contact: Carlas Powell
Tel: 409-363-2206
Email: carlas.powell@gmail.com

West DFW Texas Support Meeting
2022-11-16 13:00 - 15:00 (America/Chicago) | Zoom
Please contact Sharon for invitation instructions to the meeting.
Contact: Sharon West
Tel: 817-297-4389
Email: swest124@swbell.net

National Support Group Meeting
2022-12-12 13:00 - 15:00, 2023-01-26 13:00 - 15:00, 2023-02-21 13:00 - 15:00, 2023-03-23 13:00 - 15:00 UTC | Zoom

Northeast Texas Support Group Meeting
2023-01-18 12:00 - 14:00 UTC | Zoom
The meeting is in held in Central Time Zone. Please contact Linda for invitation instructions to the meeting. Contact: Linda Trahan Phone: 214-563-7937 E-mail: linda.trahan@sbcglobal.net

UK Support Group Meeting
2023-01-19 13:00 - 15:00 UTC | Zoom

National Support Group Meeting for Cranial Dystonia and Meige
2023-02-09 13:00 - 15:00 UTC | Zoom

Eastern District Support Group Meeting
2023-02-16 14:00 - 16:00 (Atlantic/Azores) | Zoom
This meeting is held in Eastern Time Zone.
For residents of the following states:
CT, DE, DC, FL, GA, MA, MD, ME, NH,
NJ, NY, NC, PA, PR, RI, SC, VT, VA, WV.
Please contact Bryan for invitation instructions to meeting.
Contact Person: Bryan Renehan
Phone: 301-461-0679
Email: bryan.renehan@gmail.com

Managing Dry Eye Webinar
2023-02-24 13:00 - 14:00 UTC | Zoom
Join us on Friday, February 24th @ 1 pm central time, when we will be joined by presenter Rebecca Petris, Executive Director of the Dry Eye Foundation, to discuss practical applications for managing symptoms of dry eye. If you are interested in viewing the webinar, please follow the 2 step process:
1) First, register for the webinar by clicking the following link: https://us02web.zoom.us/webinar/register/WN_pHKK0quQS_S7LKUW3K_D6A
2) After registering, you will be sent an email from Zoom with the link to view the webinar in February.
We hope to see you there!

FDA Rare Disease Day Virtual Event- "Intersections with Rare Diseases- A Patient-Focused Event"
2023-02-27 09:00 - 16:45 UTC | Online
On February 27th, the Food and Drug Administration (FDA) of the US government will be holding a Virtual Event entitled “Intersections with Rare Diseases – A Patient-focused Event,” which will explore a range of topics related to rare diseases.
Participants will have the opportunity to:

Hear directly from the FDA on initiatives to advance medical product development for rare diseases.
Engage with the FDA to provide your perspective as a patient, caregiver, or family member.
Understand considerations and challenges associated with clinical trials in small populations.

Hear from medical students on rare disease education for medical professionals

To register for the FDA Rare Disease Day Virtual Meeting, use this link: Register

NIH Rare Disease Day Event
2023-02-28 09:00 - 17:00 UTC | Online
On February 28th, the National Institutes of Health (NIH)’s National Center for Advancing Translational Sciences (NCATS) will co-sponsor this year’s Rare Disease Day event at the NIH Clinical Center.
This event aims to raise awareness about rare diseases, the people they affect, and NIH research collaborations that address scientific challenges and advance research for new treatments. This is a free event that is open to the public, including patients, patient advocates, health care providers, researchers, trainees, students, industry representatives, and government staff. This year’s event will be both virtual and in person at the Natcher Conference Center in Bethesda, MD. A livestream will be available via NIH VideoCast with the event archived for replay afterward.

To register for the NIH Rare Disease Day Event, use this link: Register

Central District Support Group Meeting
2023-03-29 13:00 - 15:00 (Atlantic/Azores) | Zoom
This meeting is held in Eastern time zone.
For residents of the following states:
AL, AR, IL, IN, IA, KS, KY, LA, MI, MN, MS,
MO, ND, OH, SD, TN, TX, WI
Please contact Tishana Cundiff for invitation instructions to meeting.
Contact Person: Tishana Cundiff
Phone: 606-303-1132
Email: tishana333@yahoo.com

National Support Group Meeting
2023-04-14 13:00 - 15:00 UTC | Zoom
This meeting is held in central time.
Please contact Charlene for invitation instructions to meeting.
Contact Person: Charlene Hudgins
Phone: 409-832-0788
Email: charlene@blepharospasm.org

West Dallas/Fort Worth, TX Support Group Meeting
2023-04-20 12:00 - 14:00 UTC | Zoom
This meeting is held in Central Time Zone.
Please contact Sharon for invitation instructions to meeting.
Contact Person: Sharon West
Phone: 817-297-4389
Email: swest124@swbell.net

New York City Support Group Meeting- Eastern District
2023-04-30 11:00 - 13:00 (Europe/Paris) | Zoom
Please contact Helene for invitation instructions to the meeting. This meeting will be held in Eastern Standard Time.

Support Group Meeting- Western District
2023-05-11 15:00 - 17:00 UTC | Zoom
If you live in these states:
AK, AZ, CA, CO, HI, ID, MT, NE,
NV, NM, OK, OR, UT, WA, WY
Please contact Cynthia for invitation instructions to the meeting. This meeting will be held in Pacific Standard Time.

National/International Support Group Meeting
2023-05-19 13:00 - 15:00 UTC | Zoom
Please contact Charlene for invitation instructions to meeting. This meeting is held is Central Standard Time.

DFW Area Support Group Meeting (TX)
2023-06-20 12:00 - 14:00 UTC | Zoom
This meeting is held in Central Time Zone. Please contact Ena for invitation instructions to meeting. Contact Person: Ena Wilmot Phone: 817-488-0445 Email: enamwa@hotmail.com

National Support Group Meeting
2023-06-21 13:00 - 15:00, 2023-07-14 13:00 - 15:00 UTC | Zoom
Please contact Charlene for invitation instructions to meeting. This meeting is held in Central Standard Time.

National Support Group Meeting
2023-08-18 13:00 - 15:00 UTC | Zoom
Date: Friday, August 18, 2023
Time: 1 pm- 3 pm (Central Time)
Location: Zoom
Please contact Charlene for invitation instructions to meeting.
Contact Person: Charlene Hudgins
Phone: 409.832.0788
Email: charlene@blepharospasm.org

Australia Support Group Meeting
2023-08-28 19:00 - 21:00 UTC | Zoom
Date: Monday, August 28, 2023
Time: 7pm Central Time
Location: Zoom
Please contact Charlene for invitation instructions to meeting.
Contact Person: Charlene Hudgins
Phone: 409.832.0788
Email: charlene@blepharospasm.org

National Support Group Meeting
2023-09-13 13:00 - 15:00 UTC | Zoom
Date: Wednesday, September 13, 2023
Time: 1 pm- 3pm Central Time
Location: Zoom
Please contact Charlene for invitation instructions to meeting.
Contact Person: Charlene Hudgins
Phone: 409.832.0788
Email: charlene@blepharospasm.org

Zoom! Houston TX Area Support Group Meeting
2023-09-15 13:00 - 15:00 UTC | Zoom
Date: Friday, September 15, 2023
Time: 1pm – 3pm central time
Location: Zoom (Please contact Carlas for invitation instructions to the meeting)
Contact Person: Carlas Powell
Phone: 409-363-2206
Email: carlas.powell@gmail.com
