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What is Advocacy?

Advocacy is a process whereby ordinary people, like you and me, are committed to working together to influence positive change in our government by making our personal stories and opinions known to our elected representatives. You do not have to be an expert in government affairs to be an advocate. You can share your knowledge about blepharospasm and the impact it has had on your life and your family's life to make our elected representatives aware of our disorder. Many elected officials have never heard of blepharospasm or are aware that it is a form of dystonia. They need to be aware that, sometimes, blepharospasm can interfere with our ability to work and support ourselves and our families. They need to be aware that blepharospasm can mean the difference between seeing and being legally blind. You are the expert in this area and you can help.

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